Hi, I’m currently awaiting my MRI results. Was told yesterday that there is an 11 week back log and delay. Had scan 5/6 weeks ago. Fed up of going to gp with new symptoms. My mom has primary progressive MS and my symptoms are similar and have started at a similar age to hers. My symptoms are currently constant pins and needles in hands, arms, feet, legs. Spasms going up my spine. Slurred speech and feeling like I can’t think of things and the words not coming out right. I’ve been a bit wobbly on my legs and most recently have had pain in my eye on movement. I am already on b 12 injections as have had pernicious anaemia for years. My go did lots of blood work to rule out other problems before referring me to the neurologist but I feel like no one is very understanding and that people assume it’s in my head. It is a big concern that if the mri comes back clear then I’m back to square one with no explanation. If anyone has any words of wisdom or advice I would be really greatful.
No words of wisdom or advice I’m afraid simply because I’m in the same boat, but I can empathise. I have very similar symptoms to yours and also a family history of ms. I had my MRI at the beginning of November and still waiting. The waiting is hard, I’d rather know, good, bad or ugly, as at least then we know what we’re dealing with.
Do you have a follow up appointment in place?
Debs
Hi, your symptoms are real and don’t think like no-one believes you!
I had years of tests with nothing coming back that showed any abnormalities.
I pushed for a diagnosis and got one…PPMS…Which turned out to be wrong!
8 years later, I was diagnosed with HSP, which presents very PPMS like .
I saw 16 neuros and not one of them suggested my problems were in my head.
Hang on in there chuck!
Pollsx
Thanks for your reply. No follow up appointment at all. Neurologist sent me a letter saying he felt it was unlikely I had ms but was probably linked to b12 deficiency and headaches. I haven’t had a headache for approx a month but symptoms are still worsening and I have been on the b12 injections for a few years therefore shouldn’t develop neuro symptoms whilst receiving treatment. Like you I would just like to know so I can attempt to find out what is causing it. Hope you have some news soon.
Thank you. I’m not sure what HSP is but will look it up. It’s a very frustrating process isn’t it …
Sorry, I should`ve explained HSP…not many folk have heard of it…even lots of medics.
Hereditary spastic paraplegia.
It`s affected my lower half…none of it works as it should.
I lost my mobility within a couple of years of onset…some 19 years ago!
pollsx