My GP referred me to a neurologist last week. We were both completely convinced I was experiencing nerve issues in my hands/feet because of low B12 or diabetes but the blood test came back fine, so back in limbo again.
I have a 7 year history of chronic pain, mobility and fatigue issues, plus various other weird symptoms.
I don’t know if it’ll turn out to be MS, but I’m finding the uncertainty of not knowing quite difficult. It just seemed so obvious that it was B12, so I think it’s spun me a bit that it’s not that. I’ve brought up MS during my chronic pain journey a couple of times (because my Nan had it really bad) but always been immediately shut down. So I guess I don’t really believe it’ll turn out to be MS, but it’s confusing.
I’m seeing the consultant in 7 weeks so I guess I just need to put it out of my mind as best I can during that time. I’ve started a symptom tracker so I can be more accurate about frequency. Am wondering if there’s anything I should be doing to help myself? The fatigue is brutal at the moment, and the stuff going on with my head and eyes can be a bit scary sometimes. Guess I’m just looking for advice, or maybe just to know others have been where I’m at right now. Thanks for reading xx
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Hi,I don’t know if I am going to be any help .
I too am at the same position as you.
I was refer to a neurologist for similar issues,I have vit deficiencies(vit B12 ,folic and vit d) all well managed.
After 10 weeks of waiting for the neurologist I decided to go private,I am waiting for a brain and full spine MRI,what prompted the neurologist was I also have trigeminal neuralgia.
The waiting is the hardest bit for me,it’s the not knowing what is the cause of the symptoms.
Hopefully myself and you get some answers soon 
As I say sorry I don’t think I’m much help x
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The waiting’s really hard, I agree! I hope you get some answers from your scans and can move forward with treatments!