Hi Everybody , I,m new to this site and to forums in general so please bear with me if I ramble a bit.
I have had ongoing problems for many years now but always small and niggly and within reason able to be ignored. Any time I approached my gp they didnt seem to have a clue or understand what i was trying to describe to them. I was eventually referred to the general medical dept of my local hospital where after several appointments they sent me for a cat scan of my head which came back clear which led them to advise that they didnt know what my problem was and i should learn how to live with it.
I cant remember the timings now but at some point one of the gps at my practice decided that my symptoms warranted a refferal to neurology. After waiting for ages for the appointment to arrive i discovered that the appointment had been sent to my old address and i had missed it. Stupidly i decided that because the symptoms i had been having had waned away not to pursue another appointment. ive toddled along reasonably happily since then with only the small niggly problems arising every now and then but living with it as i was advised by general medical.
That is until two weeks ago when i woke up with pins and needles/ tingling/ burning in both of my feet. I ignored it for the first few days but eventually headed back to my gp again. She agreed to a new refferal to neurology and that was it as far as i was concerned, i just needed to sit back and wait for the appointment.
Until a week later i was floored by extreme exhaustion and have hardly been able to get out of bed since. Got gp in to see me earlier in the week and she chased up neurology who said they would try to squeeze me in asap but said no point admitting me to hospital cos they wouldnt be able to help me, that i really needed to wait for neurology. Struggled on for another couple of days then phoned gp again as i wasnt coping. she said neurologist had advised that i could have a course of steroids if i couldnt manage any longer and thats where i am now.
Started them last night and think I’m feeling slightly better already. I guess I’m just interested to hear if there is anyone else experienced anything similar? How long should I expect to wait to see the neurologist? How long am I likely to feel this bad and am I gonna be able to get back to work?
It may be relevant, I’m not sure, my Uncle was diagnosed with ms about ten years ago.
Thanks for taking the time to read this, I’m sorry I know it’s a bit long.