I am new to the boards and have found so much helpful advice looking through the posts over the weekend. I have currently been referred to neurology urgently after a GP appointment last monday and have my appointment through for Wednesday.
A little bit of background, I was seen by neurology about 12 years ago after what was thought to be Optic N, I underwent 2 mri’s, an evoked potential and a lumber puncture then was treated with IV steroids but never given a diagnosis of MS (though it was spoke about as being a potential) that is where things become clouded, I can’t quite remember what was said and don’t have any of the letters… Anyway, I put it out of my head, learned to live with not having full vision in my eye, moved countries and didn’t bother telling my GP about my history and got on with things *hangs head at being the bad patient
Over the years there have been the odd thing that has been odd which I always had another reason what it could be, but around 18months ago I had severe numbness to the left hand, couldn’t type at all with that hand for around 3 weeks, it eventually subsided a little to leave some numbness but I was able to function and I did nothing about it as i was in the middle of IVF and didn’t want this to cloud anything *again hangs head at bad patient There have been other things, like random shooting numbness down my left leg lasting around 48hrs or so, tinnitus and overactive bladder syndrome all of which I explained away with one reason or another,
Things changed around 3 weeks ago, the numbness in my leg returned but this time it didn’t go away, getting rapidly worse, up to the point that I felt I couldn’t walk, my legs didn’t feel like they were mine, they where tingling, felt so heavy, my foot was dragging behind me and I was losing my balance. Over the course of that week the numbness moved up the full left had side of me and my hand went back to not being able to type. I have had blurred vision, a stabbing pain in my left hand side which feels like someone is stabbing me with a pin and I’ve been feeling like someone is tying something really tight around my side…oh and don’t get me started on the exhaustion!
I went to the GP who ran a load of bloods, and ruled out Vit B12 & D deficiency and did disclose my history, the first GP felt quite confident it would be Vit B12 but when I went back for the results it wasn’t and I got referred urgently to neuro. The GP I seen last monday seemed fairly confident that he was referring me for suspected RRMS. I have requested my notes from the previous neurologist but haven’t received them yet and will feel stupid going in with out being able to totally recall what he said to me. I do remember him saying that something showed on my lumbar puncture but what he actually said is anyones guess!
I’m not even really sure what I am hoping from posting all this apart from being able to know that there will be people who will understand at least in part how I am feeling. I know that no one can confirm if it is MS or not and I’m probably in for a long journey ahead of me whilst we try to figure out what they heck is going on.
I only wish I hadn’t been so stupid and ignored it all before now…