new to the world of MS

Welcome and introductions
1

hi everyone :slight_smile: came across this forum and thought it would be a great place to come and talk to people that understand!
I have just been diagnosed with MS this week, feeling a bit confused by it all, and emotions are a bit here and there, there is so much information out there it is all a bit overwhelming (probably not helped by the huge dose of steroids!!)
not really sure what I am wanting to get from posting but it just feels nice to write things down and get them out of my head!! x

2

Hi Loryn things will be overwhelming for a bit until you work out your new “normal”
Writing stuff down is pretty useful if you include dates in your notes it will help in any future consultations. My comment to you is listen to your body to develop any managing skills but try not to let your MS define you. There is good info and genuine empathy to be found here.
Good luck
Mick

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3

Hi Loryn, I am new to the forum so just checking the most recent posts and noticed nobody had replied to you. MS can be very different for different people. What do you know so far?

4

Hi Vince! Thanks for the reply, sorry that you are also new here, I assume that means you are at a similar stage in your new journey?

I have a fantastic DR that has been fabulous, diagnosed me on weds and has given me some homework to look into medication I would like to go forward with along side his reccomendations. Hoping to get to a stage that I can get rid of my symptoms a little as I currently have not real feeling in the right side of my body so not ideal!!

Hope you are ok :slight_smile:

5

Hi Mick

Thanks so much for the reply- completely agree it will just take a little time to sink in! :slight_smile:

6

Hi Lorn and welcome to the club we’d rather not join!

A diagnosis of MS sure is earth shattering. Let it sink in, be kind to yourself and keep talking to us.

love Boudsxx

7

Hi Loryn, first started to notice symptoms about 14 years ago and was finally diagnosed in 2013. I consider myself quite lucky in that I have relapsing remitting so most of the symptoms come and go. Some days I cannot walk, some days I cannot see properly. Thankfully those days are quite rare and medication seems to be working well to prevent progression. I do get loss of feeling and various other ‘weird sensations’ but have come to accept them and even find ways to laugh about them. “Why do my legs feel like they on fire?” Guess I can laugh that off as a benefit on a cold day. MS does affect people differently. I do see the funny side and think it’s good to be positive but I do appreciate others will be affected more severely so I don’t want to laugh it all off or downplay how others might be feeling. Just for me, I have it, I deal with it, I consider my self lucky :slight_smile:

8

Hello, it’s certainly a worrying time for you. I am sure your head is all over by the place. It’s all to easy to think the worst. I was diagnosed years ago in the last years of uni. I am now 50 and still lucky enough to do lots and lots. Take some time for you !!
Good luck

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