Hellooo, so I’ve been recently diagnosed with RRMS as of a month ago but we’ve basically known it was going to be MS after the double vision presented last year, were just waiting for a second ‘incident’ to officially label it as such. To date, double vision is really the only symptom I’ve had and when I did relapse the double vision just got worse for a period of time but not really had any other symptoms. I have been very fortunate to get a quick diagnosis compared to some of the stories I’ve read about lurking on here. Reading other people’s stories are things I can’t stop doing as I want to know more about this thing that is happening to me but I also have such a big disconnect to other people’s stories on here that sometimes I feel like a fraud and others I just imagine myself in the life of someone else and really freak myself out. I don’t know how to use these forums properly without getting freaked out. My ‘MS team’ (neuro and nurse) tell me that MS is a very individual disease and no two people have the same journey, they tell me that plenty of people get MS quite mild and if treatment is started early enough (like I have) that can affect the way the disease progresses too. So I know this and it probably adds to my feeling of helplessness as I’m the sort of person who wants to know how this is all going to go and plan.
I’ve probably not been coherent here and have gone back and forth a lot but I suppose the question I am asking and want to know is, what is the best way to use these forums? And what is the best way to deal with uncertain future freak-out? Is it terrible all the time?