Hi everyone, I am newly diagnosed with RRMS in Feb 24, despite symptoms since 2013. I have been dealing with it all alone alongside other conditions and fought to stay employed full time. Ppl have switched off or become distant as I always have something wrong and its made me socially awkward and defencive talking about my health. Its so hard to hear others with MS as they have partners or a close family with lots of support.
1 Like
So sorry to hear that . This might be of some help or not but have you looked for any local MS groups. The MS Society website has some details also check MS Together, Shift MS and MSUK
4 Likes
Thank you, Hank. Ive signed up to a few things. Sadly, I had to give up work. There is some relief, but hard to deal with and more time to over think and brain fog. But glad i can nap during the day when the eye twitching starts. I will try ones you mentioned I havent looked at. Thank you.
So sorry to read that you’ve been feeling like that. I just wanted to reply so you realised that people have read your post and you are not alone. The other person here who has replied has provided some good advice, in my opinion. Hope you find a local MS support group that works for you.
1 Like
Also have a look at Overcoming MS. It runs various webinars and events around the UK. It’s also a useful site for advice on living with MS including on Diet, Exercise, Mindfulness/ Meditation.
It’s a shame that all us MS folk are spread relatively thinly across the UK but there are a fair few groups and events etc out there.
1 Like
Thank you, I have signed up for a few things but some have time difference. But will keep going. Appreciate you sharing.
Thank you for your reply and kind words.