Hi, I am 41 and was diagnosed in January that I have relapse remitting MS. I feel my world has been turned upside down. My daughters and partner have been amazing but I think it will help talking to other people that know what I am going through.
I was under a lot of stress last year and early December I was put in hospital as thought I had a stroke but all tests were negative of that, I had an MRI and results show lesions on my brain but didn’t confirm till January after having more tests and a lumber puncture. I had another MRI couple weeks ago and my MS is still active. I have been on injections (interferon) for about 3 months to help with my vision as that went a bit haywire back in December and still not back to normal.
Would be lovely to join the MS society community
Hello,
What a shock for you, so first thing to say is give yourself some time to get things clear in your head. Lots of people have thoughts and opinions but you need to have things clear in your head.
I was diagnosed with releasing remitting at 22, I am now 50. At 22 I thought the world had ended and I would never get to 50!!
The forum is great and you should ask lots of questions, there are people on here who would have experienced some elements of what you are going through. No one has the same MS as anyone else but you can join other peoples experiences together. Just knowing you aren’t bonkers can really help.
Good luck
Hi there.
Having a diagnosis with something as chronic as MS does turn your world upside down and inside out!
It’s good to hear your partner and daughters are supportive. We really need that in our lives.
I’ve had PPMS 24 years and it took 22 years to get properly diagnosed.
Happy to chat more.
Boudsx
Hi
As James said, it is a big deal and pretty hard to process. You will learn a vast amount about yourself and how to manage any symptoms. You will also find that what strategy works today may not work another time. I’ve been doing this for 30 odd years and I am still learning and getting things wrong as often as right. There is a deep pool of experience and empathy here, we may not have the answers but there will be someone who knows exactly what you are talking about.
All the best
Mick
Mick thank you for your warm kind words. How are you? Its nice to speak to people who are going through it plus that can give me information or advice.
I feel like it is a ticking time bomb in my head and every morning when i wake i wonder if today is the day my eyesight will be better or gone! every time i have a twinge or pain i think this is it i am relapsing. I know i will get there but just takes time.
take care
kerry
Hi there sorry to hear you had 22 years of being un-diagnosed that must have been tough.
Thank you for your reply, i was a little scared to message on here as was not sure if it would get seen.
Take care
kerry
Thank you for reaching out to me and your kind words.
Hi Kerry, things are pretty good for me, I feel incredibly fortunate. The uncertainty can be difficult and when stuff happens it is very scary. I have had a number of worrying symptoms which thought were MS related but once I found out they weren’t the worry reduced massively! I hope you are as well as can be and you enjoy the good bits of every day. Mick