Have just come out of hospital after a few days and mind reeling a little! Not really sure what I’m looking for except perhaps to vent and wonder if anyone else in similar situation??
Brief history - numerous ‘possible’ neuro symptoms over many years - vertigo, burning ankles, random tingling patches in spine which have all been very short lived from hours to a few days and which I pretty much never gave any thought to assuming ear infections, trapped nerves etc. Last year, sudden onset of pebbles under right foot, tingling and reduced sensation in upper chest , underarm and inner arm which after 3 weeks visited GP for having tried a few chiropractor appts with no success.
Got referral to neuro which took 5 months but in meantime had started antidepressants for panic attacks and symptoms subsided so I thought maybe anxiety related Month before neuro appt had emergency bowel resection for strangulated bowel, very traumatic and when visited neuro appt in March was experiencing various abnormal nerve sensations in abdomen, hip, leg and foot - which I attributed in part to post op stuff. Referred for MRI which never actually happened but had stuff going on with kids so kind of pushed onto backburner.
Noticed 3 weeks ago foot dragging slightly plus waves of heat in feet and cramps in calves, burning at back of knees…then wham! last week, total bladder retention, tearing burning pains in hips, unable to write properly, leg spasming and giving way so went to A&E.
Had brain and spine MRI, Lumbar etc, thankfully not stroke or tumour Discharged with current dx Neuroinflammation under investigation. 1 non enhanced on spinal cord, 1 enhanced, no enhancement of nerve roots or meninges, plus non specific white matter changes in brain, says MS most likely dx but needs further confirmation ie ‘wait and see’ plus further MRI. Some LP results still pending.
Has 3 days IV steroids and thankfully bladder working again and intense nerve pains subsided, just now general weak/wobby and slightly tingly with unreliable legs.
Gosh sorry for length of this!! So am kind of preparing for possible MS dx but feeling a bit in limbo. I’m wodering whether it could be lapsing/reoccuring and perhaps this flare triggered by the trauma of the bowel op?
Thanks for reading, so sorry to ramble but having a son with Autism, I know how incredibly supportive forums can be and am really grateful to have found this one!