Hello all, new member.
Am hoping some kind soul can give me some advice really as to what I should do next.
I have had typical MS symptoms that have gradually worsened over 18 months or so. I had my first MRI in November 14 which showed lesions in the brain & neck. My optician also identified an area on optic nerve of damage indicating an episode of optic neuritis. Also had the VER electrical tests + gallons of blood tests.
In March 15 had 2nd MRI and have recently seen the neurologist who, while he says the most likely explanation of my symptoms is MS, because the 2nd MRI shows no significant changes, he cannot say definitively that it is MS and to see him again in 6 months.
I must admit to being pretty horrified at the prospect of 6 months more of uncertainty as this is affecting pretty much every area of my life. Mobility, mental acuity, vision, bladder, emotions & moods, fatigue & I just don’t know what I can do. I have an appointment this coming week to see my GP to see what they suggest and, at the neurologists suggestion, with an MS nurse, but they cannot see me till June.
I have quite crucial decisions to make regarding my working life before I see the neurologist again and I don’t know how I can make an informed decision in my current position. Neuro did not say he was planning on repeating the MRIs in 6 months, so I don’t understand how he will be in a position to make any new evaluation when I see him again and dread the prospect of being in the same situation of not knowing again.
I hope to goodness I do not have MS and that my symptoms are a clinically isolated episode that I just have to learn to live with and manage, but I do need to know if they are something that is going to worsen to enable me to make the work & life decisions upcoming.
Sorry for such a long post, but I am feeling a little as if I have been just left to get on with it, whatever ‘It’ is.