I was diagnosed with relapsing remitting MS last week. Not to sure if its sunk in yet Is anyone aware of any support groups around Newcastle area I’ve not met my Ms nurse yet. But I do know my neurologist would like me to start therapy ASAP I’m finding things a little hard, I have a little boy with complex needs he’s been a very poorly little boy since birth he is 16months now. I’m also in the middle of moving house I feel like I just can’t cope with it all :’( Does anyone know where I can go for some help please? Thank you Andrea xx
Just wanted to say hi and welcome. Not sure about support groups near you but on the home page of this site you can search for specialist etc in your area and I’m sure one option is support groups. Everyone here is lovely and supportive too X
Sorry to hear of your diagnosis and that you are finding things so difficult at the moment. It does sound like you have lots going on in your life, I sincerley hope your son’s health improves.
If you use the near me function at the top of this page and enter your location you should find a MS society branch close to you where you can access some support and information. There is always the MS society helpline: 0808 800 8000 if you want to talk to somebody on the phone, they may be able to put you in touch with your local support services.
You will also find a lot of support here on this forum, we can understand how hard a new dx can be. Try to remember that things are tough at the moment as you have had a big curve-ball thrown at you, but things will improve, not overnight but they will get better.
I’m so sorry about your diagnosis Andrea. I was diagnosed a month ago and it’s definitely not sunk in. My boys are teenagers now though so I’m not as worried about them other than wanting to play it down so they sob feel too responsible for looking after me. I dint know what support is available in Newcastle but there is something on this site where you can put in your hometown or postcode and it tells you the details of your local ms sic grotto and other local support services. Hope you find one info soon x
Hi Andrea, im sorry to hear of your diagnosis. Life sounds particularly tough for you at the moment! Im afraid i dont know of any local support groups to you but im sure someone will post something soon. I just wanted to write on your post because i find these times (at night when everyone else is sleeping) the lonliest and scarriest. Im sure that you will now get all the help you need and deserve. And WE are always here on this forum, everyone is so so kind and helpful without being patronising. Take care of YOURSELF! Mandy moo xx
Hi Andrea and welcome to the forum…
I’m so sorry to hear you are having such a hard time. It is such an enormous shock to be diagnosed and it takes ages to sink it.
You will be feeling a rollercoaster of emotions right now and the only way to deal with them is to go with them… and it will get easier. I promise you it will get easier!
Your MS nurse can be a great help. They have more time than neurologists and she will be able to advise you on just about anything. If you have questions, write them down so you don’t forget them. On other hand, any questions can be answered on here usually… we are a great bunch of experts!!!
You are having to deal with so much hon… your poorly baby boy and moving house. Have you got any support? Partner? Family? Friend?
How are other people coping with your diagnosis? What I mean is, are they being supportive? I hope so. Unfortunately some families go into denial and are the opposite of supportive!
Stress is very bad for MS and makes symptoms worse… and you are dealing with a lot of stress right now. The best thing you can do is talk this through with someone. If you haven’t got anyone you feel you can talk to, please call the Helpline… the number is at the bottom of page. Sometimes just talking can help a great deal.
It’s great your neuro wants to start therapy asap. That IS good news!
Sending you lots of good wishes and (((((((((((((((((((((HUGS)))))))))))))))))))) Andrea. You are going through the worst possible time right now… bear in mind that, given time, this will get easier.
Hi Andrea, I really do feel for you. I have a son with special needs too, although he is 20 now! Do you have a social worker for your son, if not ask your GP. They can sort out some home help or respite. I had twins when my son was 4 and I was able to get a lot of help through my social worker to help with my son who has Downs syndrome and Autism.
Try and think positive as you have RRMS you will gets DMDs that will reduce the number of relapses and therefore progression of the disease.