Hello, I have recently (last week) been diagnosed with relapsing remitting MS and have been given 3 treatment options. I have around 7 active lesions, 3 of them new.
This is all very new and it’s very difficult to decide which would be the best option for me. I was wondering if anyone is on Ofatumumab (Kesimpta) and how you have found the side effects and injecting yourself? The other 2 options are infusions. I have 2 young children and a nearly teenager so life is busy. I’m confused and nervous.
Hi there is a Facebook page for Kesimpta. People using this drug discuss how they feel, both positive and negative comments, so you would probably find this site quite useful.
Also look at Shift.ms where you can search for comments on Kesimpta.
My daughter has found both these sites informative.
What are your other drug options? Ocrevus and Tysabri, perhaps? And what, if any, recommendations have you had from your neurologist? If your options are all at the high-efficacy end of the scale (as I am guessing) on account of your MS being a bit lively (as mine has always been) then you can’t go wrong - they’re all very good drugs. The most important thing, I think, is to get on any of them as soon as you can so that you protect yourself.
My personal experience is with Tysabri, and it has kept my highly active MS at bay for more than s decade. The high efficacy drugs really can do that.
The other 2 options are Tysabri and ocrelizumab. Im put off Tysabri with the time commitment and going to hospital every 4 weeks. The other one scares me a bit as it will be in my system for 6 months.
Thank you for you comment, it’s very encouraging in this new world of MS and treatment.
The way I have looked at in with my own highly-active RRMS is that the inconveniences and potential side effects of highly-effective DMDs are tiny relative to the brutal and disabling effects (as I found to my cost) of poorly-managed MS. It really is a blessing to have it under control so I can get on with my life. I hope you find the same.
Preventing disabling relapses really is the only show in town, and I am glad that you have the opportunity to do that before MS does you too much damage.
I’ve just started the kesimpta injection
Easy to do yourself - like an epi pen
The dose is in and you just have to wait for the two clicks and watch a green barrel come across the window and it’s in
I’ll update when I have second one this week