I don’t know if anyone’s been following my saga with Trigeminal Neuralgia (TN) and Carbamazepine. I had horrible face pain when speaking or eating, went to my GP and he prescribed Carbamazepine, standard drug for TN. It made the pain a lot better but made miy walking and bladder control much worse, after a single dose. I was very scared, wondering if it was the drug or whether all my symptoms were part of a relapse. I googled ‘multiple sclerosis’ and ‘Carbamazepine’ and found a British Medical Journal article describing Carbamazepine making MS symptoms worse. I spoke to my GP about it, he was very sorry about what he’d done to me and, at my suggestion, prescribed Gabapentin instead.
Anyway the point of this post is as follows. When I told a friend with MS this sad story, he said ‘I would never take a new drug without googling it first’. I thought, well I never would NOW and I wish I never had. I thought I would share on here and hope that someone gets a benefit from my horrible experience.