Never experienced, has anyone else?

Good Morning.

My MS nurse has said that it sounds as though I am having another relapse but at the moment because the relapse is not disabling and I am yet to start MS treatment all they can do is evidence that it’s happening and the symptoms I am having.

Anyway on top of what symptoms I am currently experiencing I have got a funny ache/downward pressure at the top of my spine and into my shoulders (kind of like a straight line across), I can lift my arms up without any pain but the pressure is horrendous, I feel like someone is pushing me down.

I’ve tried lots of different things to take it away but nothing is helping. Has anyone experienced this, is there anything I can do to help?

I have contacted my MS nurse again but there are only two that cover the city I live in and one is on leave so she is going to be rushed off her feet.


Can i ask why your are not allowed a DMT? Have you been told you have MS? Or still waiting to see if you have?

I have been told I have MS but they wanted me to have a lumbar puncture to rule out any other nastiness before I started a DMT.

I have my next appointment to discuss my options on 6/6.