New to the forum and first time posting.
I’m writing because I’m just at the end of my tether with my eye, and the headaches I get.
I’m a 34yoF diagnosed with RRMS in 2014. First optic Nueritis began as a hole in my vision which I ignored, after about 3 days I went completely blind in my left eye. I went to hospital etc, had iv steroids etc. My sight never came back 100%. I suffered another ON not long after, & then another. Neither as severe as the first.
I feel extremely lucky when I say that aside from this, I haven’t had anything major. I’ve been on Tecfidera since the very beginning (was living in Germany at the time) and I do suffer with odd sensations and so on, and other bits and bobs, but nothing too extreme.
The issue is my eye. It has never stopped hurting. It hurts so much that I squeeze it to relieve the pain. The whole left side of my head aches with it sometimes. It isn’t constant, but it feels like it. I’ve just started a new job, looking at a screen, and it is so strained. My vision in my left eye is so blurry and grey. Glasses don’t help. Nothing does.
I suppose I wanted to know if anyone else has the same, and how they alleviate it.
I’m also waiting for a follow up at the eye hospital for suspected glaucoma. Joy.
Thanks! And I wish all of you tge very best.