Hi to everybody! I would say I’m back but I’ve never been away, just had an an awful lot to deal with lately, and still don’t know if I’m able to put it into words lol.
in the last year, I’ve been getting worse, but I’ve also been getting a lot of new crazy symptoms, so there were lot of changes in the house first, so it started with the OT arranging a stair lift, then a special chair for the living room, and a wet room. Which we have been delighted with, but the GP has been really lost as to what to do, so sent me back to my neurologist.
So neuro repeats the usual MRI’s, says there’s some changes but doesn’t think there’s enough changes to warrant how poorly I’ve gotten. He thinks there could be something else at play, we already knew I have arthritis in my right knee and hip. So got sent to rheumatologist this time, so he said I’ve got fibromyalgia ontop of my PPMS and arthritis, so my heads been up my bum, so to speak.
I spend months just blaming my MS and thinking wow I’m going down hill fast, but apparently dealing with one thing isn’t enough, my body wants to be greedy.
So I’ve been hiding out a bit, trying to put my head together, and know what pains what, and now the cold is hitting, everything is so sore. How is it affecting everyone else?
Hugs to all