Just after some help again! Finally seeing a proper neuroloigist not a locum. Recieved my copy of his letter to Gp and not really sure what he is actually saying about my MS? This is an extract - any thought welcome!
" The most recent MRI of her head showed the brainstem lesion is no longer enhancing, however it showed one extra area of white matter abnormality close to occipital horn. This is therefore likely to be a demylinating disease and with the episodes of optic neuritis, vertigo, clumsinees and sensory problems there might already be 3 significantlly clinical episodes, and therefore could be diagnosed with relapsing remitting muliple sclerosis. We had a discussion regarding diagnosis and treatments (must have passed out at this point as i dont remeber this happening?!) If futher relapses occur we can pescribe 500mg Dexamethosone orally for 5 days. I will ask MS nurse to be in contact and then we can have a discussion about disease-modifying treatments. I will see her again in 3 months and will write to her regarding her recent lumbar puncture results."
So do i have MS or is likley? Had lumbar puncture 6 days prior to the appt he is writing about, he did not have all results back from LP but said if anything to worry about popped up he would call. Did he get postive MS dx from LP and MRI? I just thought i had been dx and now im unsure!