Good Afternoon All,
I will try and keep this short and sweet, however that’s harder said than done when you’re so fed up of getting nowhere and still suffering 14 months later.
I have been on and off here over the past 14 months with neurological issues that started back in May last year. (numbness in left knee, lasted two weeks)
Due to covid i was put on a waiting list to then go on the waiting list to see neurologist, so I took it upon myself to go private (What a waste of time that was)
From the symptoms I described he has diagnosed me with (L ulnar neuritia with hypervigilance symptoms)
I basically paid him £200 for him to tell me i have nerve damage in my left arm, and that i have hypervigilance, which is basically a state of heightened alertness.
December 2019 - Nerve conduction test said i had nerve damage in left arm slightly and MRI of head and spine clear.
However if you read my symptoms below, There is something more to it? Do i push on and ask to see another opinion.
Odd sensations in vagina – felt different when wiping, feeling of going numb.
Left knee went numb for two weeks.
September 1st 2019
Feeling of Flu like symptoms – lasted several weeks. Doctors put down to Viral infection, along with sharp ear pains that had started a few weeks before. (Referred to ENT for pains in Ears 05.12.19)
September 11th – Bloods – Came back negative
September 13th – Symptoms had got worse, inside vagina started to burn, back to the doctors, told me to ride it out.
Beginning of October – Tingling sensation on nose – lasted 2 weeks / 1 week of frequent urge to urinate but little coming out, Numb sensation on forehead. 3 days later on left knee.
20th October – sleep disturbances, unable to get back to sleep – lasted 4 / 5 weeks.
27th October – A & E – Felt unwell again.
28th October – Back to Doctors for some Anxiety tablets to try and help worrying because of symptoms.
November 3rd – Pins and needles in left arm, (2 weeks), on and off. Left little finger feeling of numbness.
November 8th – Back to Doctors, explain numb sensations on forehead and knee, advised for Vitamin D deficiency blood test. all bloods came back clear
January 23rd – Tingling of lip (During having cold) lasted ½ day. Intermittent
June 03rd – Burning in arms and feet
June 10th – Tingling in left little finger
July 2nd – Tingling in arms when bent – still on going
July 27th - fatigued – 2 days i literally couldnt function i had to lay down at work in the toilets, then got better over coming days
I am unsure what i should do next?
I am worried, i know my body and i know something isnt right, my current symptoms are
Burning and tingling in arms (mainly tingling when bent)
Tingling in legs when bent, mainly when asleep, knees are numb.
Eyes go out of focus sometimes. Mainly at work when I’m starring at something.
Legs and arms feel weak, shaky if walking down stairs or picking up objects feel like they are shaking.
Spasms daily, mainly when im resting
Burning inside vagina.
Burning of feet
Any advise would be so appreciated. I am so fed up. Its been over a year now since all this started and i dont know where else to turn
Thank you for reading (if you got this far) haha.