Hello, I’m currently waiting for a diagnosis/ appointment with a neurologist that is up coming shortly after waiting a few weeks. I’m glad I’ve found this page now and read through I just want to share my symptoms which lead me to numerous tests which I’ll go into. So my first symptom was around Christmas my left side of my face went numb for a good few weeks and then the feeling come back eventually had an appointment with the hospital regarding it but never attended as I was in hospital for the following symptoms - so one morning I woke up and my hip left side again felt like I was standing in front on the radiator the heat coming off it was strange to say the least but to touch was normal then if spread to my left leg and arm neck etc so this was my first hospital visit to be sent home after they where happy it wasn’t an infection. So a few days later my skin down my left side was sore to touch or very sensitive like pins and needles and electric shocks and my hand went numb completely! And my coordination went along with that. So I went into hospital and they done an mri & found lesions and on the drs letter it says that’s what they think it may be. Blood tests where fine and I’m waiting on like I said to speak to neurologist in regards to my lumbar puncture results. I just want some advice from anyone whose dealt with anything similar to this I’m in limbo and I’m terrified of what else it could be if anything after waiting for weeks to find out. ( next week I find out) it’s nothing nasty like a tumor etc and I’m almost certain it’s MS. I’m in my mid 20s and feel like my life is more on hold now even without covid. the stress of not knowing is worse more to the point my hair is falling out and have no control over my left hand I’ve always been clumsy but to know I want to pick something out but my brain doesn’t allow the hand movements is very worrying. I’m hoping like my face numbness it’ll come back eventually. I think my main question is has anyone experienced similar symptoms and how do you deal with it ? If you read all this thank you so much.
Hi April
The numb face is very familiar to me. It is probably Bells Palsy which I have had several times.
First time in my teens, 2nd time in my 20’s and 3rd time shortly before my diagnosis which was in 2008.
You will probably realise that you have mainly sensory symptoms? They sound like it to me.
Temperature regulation problems has been constant for me. The Hippothalamus acts as the body’s thermostat and it will be interesting to know if there is a lesion there.
Once you have an official diagnosis you ought to be put in touch with a MS nurse who will support you in making the decision of which Disease Modifying Drug (DMD) to choose.
He/she can also help you to access therapies such as physio.
therefore ask questions because the nurses are fabulous.
Stress is the worst thing as it makes all symptoms worse.
Good luck and let us know how it goes
Carole x
Thank you for your reply Carole 
yes I thought Bell’s palsy but it was just the sensation of being numb no eye drooping etc? I’ve got my appointment well phone appointment with a neurologist tomorrow I’m trying to write a list of all strange symptoms I’ve had and when I’ve read on here a lot of them are similar which makes me feel a bit more relieved I suppose ! And questions too so should know more tomorrow this has been on and off since Christmas and just looking forward to finally getting an answer and hopefully preventing further relapses in the future. Yes sensory symptoms coordination issues with my left hand and balance as well sometimes it looks like I’m drunk walking ! I can’t remember exactly how many lesions are there but what I can remember is I had a couple on my brain and top of my spine. The sigh of relief was I was let out of hospital after 6 days of tests and more stress which made symptoms a lot worse as due to covid etc no one could visit during uncertain times. I’ll try & think of some questions today but it’s nice ?? To know someone else had experienced similar bizzare symptoms. I’ve stopped googling as I know it’s worst thing to do and so happy I found this forum 
thank you again x
Hello AprilLou
Everything Carole has said is absolutely right so I won’t repeat her words.
You clearly have the right idea in preparing for your phone appointment tomorrow. If you try and write it down as a timeline it will make more sense and be easier to explain to the neuro.
It does sound quite a lot as though MS is a likely diagnosis. We don’t often say that to people in ‘limbo’, but I think you know that’s what the doctors have been testing you for and having found lesions on MRI, that is the most likely outcome.
The good thing about MS (assuming I’m right), is that as your previous symptoms have got better, you would be diagnosed with the relapsing remitting variant of MS and there are DMDs available to reduce the number and severity of relapses. So chances are you’ll be diagnosed, assigned to an MS nurse and the next step will be discussing drug therapies.
When you’ve had your phone appointment come back to this thread and tell us the result and whatever else you want to know that we might be able to help with.
Good luck for tomorrow.
Sue
Hello thanks sue. I’ve just spoken to my neurologist and was lovely. He explained that the mri almost confirmed ms but cause I’d have the LP as well and there’s things wrong there I’ve been diagnosed with remitting relapsing ms. I’m in absolute shock I asked my questions I had written down and my mind was racing so tbh I can’t remember half the answers. I’m devastated but relieved I now know what’s wrong. I assume I wait for a call from a nurse to discuss my treatments there was a mention of having blood tests again to broaden my treatment options also I wouldn’t even know where to begin as we where planning on becoming pregnant in august which seems to be going out the window now 
I think my question is what are my next steps ? My neurologist wants me to get on treatment as soon as possible. I’m unsure what my best options are. I’m in shock but I already kind of knew what the outcome would be but now it’s confirmed it’s scared me. I’m 28 and was due to get married in September it’s the uncertainty of this disease that scares me. Thank you so much for listening to me ramble xxx
Im so sorry AprilLou that youve been through this. Itll take some time to process it. Im thinking of you. Im currently waiting for an appointment to see a neurologist. I now have very trembling hands, takes me ages to do anything. Kind regards Rose
Hello AprilLou
I’m so sorry you’ve had this confirmed. I know you’d said you were expecting it, but actually hearing the words sends you into shock. Having it said over the phone rather than in person seems harder too.
Talking about the diagnosis with your family and friends is probably your next step. Have a look at https://mstrust.org.uk/about-ms/newly-diagnosed/telling-people
With regard to treatment options, once you’ve had a chance to catch your breath have a look at https://mstrust.org.uk/about-ms/ms-treatments/ms-decisions-aid This explains the options for disease modifying drugs (DMDs). Keep in mind that DMDs are designed to reduce the number and severity of relapses. They aren’t a cure.
One DMD which you can take while pregnant is Copaxone. It’s not massively effective, but in the main doesn’t give people severe side effects. So pregnancy isn’t out of the question. Obviously you need to talk to your fiancé about the future, about marriage and children as well as your own health prospects.
Don’t expect to receive news like you’ve had today and quickly assimilate and come to terms with it. It’s going to take time and learning just to figure out how you feel. Don’t be in a hurry to ‘accept’ MS either. I don’t like MS, it’s horrible and I do not accept it. What I’ve had to do, along with my husband, is to figure out how to coexist with it.
Best of luck, we will help as much as we are able. This community of ours is great, we do support each other and will readily wrap our metaphorical arms around you while you get your head round MS.
Sue
Hi thank you all for your comments my family etc have all taken the news differently as I don’t want sympathy I’m actually stronger than I thought I’d be with this all of course I have my moments but like you said I’ve kinda had a feeling for a while and now it’s actually been confirmed it’s very daunting to me and yes it is scary. The relief I feel is I’m not going crazy and it’s not all in my head and it is nice to have this group to talk amongst as it’s people I can relate too whereas family understand and sympathetic but don’t understand the ‘invisable illness’. I look forward to speaking to a nurse hopefully sooner rather than later about all options as like you mentioned my head is cabbaged with this whole new thing to learn about … as well as now having to learn about how to keep it under control. So many this message is a big thank you for all your responses it’s pulled me from a dark place and I know I can’t ‘beat’ it but live along side it. Xx Laura