So i’ve just got back from neuro appointment. I last saw her briefly in Jan, she wasn’t aware of all the symptoms I had going on just blackouts and a seizure so made a double appointment for me today. She examined me and the whole of the left side of my body has lost sensation, that was the only part really of the neuro exam which was abnormal. My left leg didn’t have any reflex either. I had a brain MRI in january but as far as I can tell wasn’t specifically looking for MS so I am having another brain MRI as well as a spinal MRI and follow up in 2 months. She did say my symptoms could indicate MS but she hopes it’s not. So that’s the next step and she said we go from there dependany on the results. After 3 years I finally feel like I could be getting somewhere, although she did say sometimes there just isn’t a definite answer.
I hope you get answers soon. I am on an intensive course of B12 to see if that helps my situation. I have being seen by neuros for 3 years now too and still a bit in dark.
Moyna xxx
Hi moyna, thank you, it was found I was severely deficient in B12 so also had intensive treatment but didn’t improve the symptoms as the levels improved. Then they found I was deficient in vitamin D so had treatment for that which did nothing either. Feel very frustrated but this neuro is fab and lucky to be followed up by the consultant and not one of her registrars. Hope things improve for you soon too xx