Well, my neuro said that they found an area of inflammation in my spine from results of the LP.
My VEP and bloods were all normal. I had loads of those little bottles of blood taken and I asked if they had tested for Vitamin D3 and B12 deficiencies and she said they had and all were normal. Good news
So she said we can put my symptoms down to the inflammation in spine and brain stem as shown by the MRI scan and LP.
She then went on to say that some people have what’s called a CIS (I knew this was coming), and that she would be keeping an eye on me and has boooked me in to see her in 12 months time.
I asked if I should be taking vitamin D3 supplements and she said yes and that she’ll be sending me some info about it she has just got some new stuff in but didn’t have it with her. She didn’t actually say how much of a dose I should take though.
She also said that if I have any new symptoms at all, or any worsening of symptoms, I am to skip my GP and waiting lists, phone her directly (or her secretary) and she will see me.
I asked if this was an official dx and she said it was.
I asked how likely this is to turn into MS and she said that if I do not have a relapse within the next 5 years then it is much less likely to develop into MS, according to statistics etc.
Overall, I feel relief. I think I can try and put this to the back of my mind now and get on with my life.
I hope I never have anything like this again. If I do, of course, I am prepared. It will always be in the back of my mind but it can stay there tucked away for now.
I am actually really happy with the speed at which everything has been dealt with. I’ve had all the tests needed and am happy with the outcome, well not happy that any of this happened in the first place, but happy that I have the answers to my symptoms, even if the future cannot be predicted.
Of course, if I do get anything worrying happening, I shall be straight on the phone…but finger’s crossed, I won’t need to. Am trying to keep optimistic.
What I wanted to ask (afterwards of course - isn’t that always the way? lol), was how is a inflammation detected from a LP? Would this be the banding? Or lesion? Would it have been picked up if I had had an MRI of spine and brain, and not just brain? I get a little confused with all the terms - banding, lesions, inflammation etc.