My MS Nurse has kindly made referrals for me to see a Neuro-Physiotherapist for an assessment, and hopefully get guidance on mobility and weakness issues I’m dealing with, and also a MS Counsellor for mood issues and to talk through my diagnosis and how I’m feeling.
Anyone else used these services, and did you find it helped? 
Lauren
Hello, yes I work a Neuro-Physio (every week for an hour) and it has been really helpful. For my MS it has been great from working on weaker limbs to highlighting where improvements in my posture could be made. I think I am till walking because of the help. It isn’t with the nhs I have to pay to go private.
James
Hi Lauren
Yes I have tried both on the recommendation and referral of my MS Nurses. The counselling was first (a couple of years ago). I have to say my counsellor was amazing. I was struggling with my PPMS diagnosis (Sept 22), and it helped me build strategies I use even today when my thoughts are spiralling!! So go for it I’d say.
I also worked with an NHS neurophysio for over 7 months in 2025 and she really knew what was the correct way to work with me. Initially it was assessment of current mobility, proprioception and movement to enable her to formulate a therapy but I built up so much trust and confidence in her to enable me to walk with my crutches a little easier.
I wish you well xx
Hi @James4 and @BlinkingMS - thank you both for your replies, it sounds like you are having/have had positive experiences with them, so I’m looking forward to get going with it
Lauren
I have used a Neuro physio on NHS, had about 8 months of appointments and they sorted out orthotics and a FES specialist appointment that got me a FES so I highly recommend going down that route.
Not had a MS councilor but for the first time considering asking for possible help in that direction as well, diagnosed Nov 24 and have kind of buried it a bit and tried to carry on as normal, however I have noticed I am struggling a bit recently and even walked out of work today (after I rather embarrassingly lost my temper), so I think it could be a benefit.
That’s great to hear @Cavworld - I’ve been hoping to get a referral for orthotics, so good to hear the physio may be able to help with that too
I know how you feel, I think I’ve been bottling things up and, due to certain things in my life, not being able to process the diagnosis or focus on my wellbeing, so keep snapping. Sending you lots of positive thoughts and I hope you get a referral soon to see someone (if you decide to go down that route) 
Lauren
@laurenm yes the Physio’s at my hospital can refer for both, orthotics were at the same hospital and FES at a rehab hospital. I find myself going between using both! FES is a game changer to be fair but use the orthotic side for convenience depending where I am going and what I’m wearing that day.
I am definitely going to have to bring up counseling at next appointment as OH has just decided he is attending with me, as he thinks I will not admit to struggling if I’m on my own 
What comes through in all these responses is how central proprioception and movement quality are to the physio work - not just strengthening muscles but retraining how the brain and body communicate about balance and position. That kind of work can feel slow at first but tends to compound in a noticeable way once the nervous system starts to trust the feedback again. Really glad to hear that both the physio and counselling have made such a difference - having somewhere to process the emotional side seems to make the physical work more sustainable too.
Thank you. This is exactly what I need to hear, having embarked on a programme of physio aimed at strength and conditioning plus balance and proprioception. Frankly I am not expecting much from it, given what a mess things are in after 25+ years of MS, but your words give me hope and encouragement.