Been reading lots of helpful posts this evening as had a couple of bad days on the sofa, and all your fab advice and positivity really helps…thankyou to you all.
I’m in that wonderful place of limboland, and currently working with my second opinion neuro who is trying to help investigate my ms like symptoms (teamed with action myoclonic jerks) but with all clear on all tests so far. I have been ill since feb 2016, and since christmas last year I started to have to use a wheelchair as my mobility has got progressively worse. New neuro really wants me to return to physio…old physio discharged me feb this year saying he didn’t know how to help me as exercises make me worse. He tried hydrotherapy with me too but that made my mobility, fatigue and general unwellness even worse, so after a few sessions had to stop (had to get carried out of the pool in the last session as spasms got so bad).
I dont know what to do. On one hand I am scared to go back to physio as it sets me back, sometimes for days (and I have a job, young kids to look after, and don’t want to burden my hubby anymore than I already do), but on the other I am worried that I am now probably getting deconditioned through lack of exercise, so its difficult to tell if there is progression of my symptoms or just too much sitting on the sofa creating my Homer Simpson wedge!
I would really appreiciate hearing about any physio problems and how you overcame them…I read everywhere that physio is so important and helps ms immensely, so maybe this is a big clue towards it not being ms?