Physiotherapy

Everyday living
1

Finding it difficult to walk now, has anyone had any success with Physiotherapy?

2

My MS nurse discussed this with me when I had a meeting with her. Have access to her oh and physio through the same centre.

3

make sure its a neuro physio, they understand ms and its problems

yes my course of physio was great, she nailed the fact that my centre of gravity is naff.

good luck

carole x

4

Hi

I think physiotherapy is great. I remember reading something in the MS Society magazine about some research that showed that people who receive physio as well as steroids after a relapse will generally have a better recovery than those who just have steroids. It won’t necessarily ‘fix’ your weakness, but at the very least it helps to make the best use of the strength you do have. The exercises I do are based on Pilates, which is all about improving your core strength & stability (if you’re unable to get physio, you could always try a simple Pilates class at the gym). I try & do some exercises every day at home, and I think my walking is better after I’ve done them.

As Carole says, make sure you get one who specialises in neurological stuff as they’ll have a much better understanding, especially of things like fatigue. So they’ll be fine with you taking plenty of breaks in between exercises. And take breaks even if you don’t feel like you need it. There’s been times when I’ve wanted to push myself when I’ve had physio, but ended up overdoing it a bit & feeling a bit worse the next day.

Good luck with it.

Dan

5

Thanks for the advice, going to try and do some exercises before I see my specialist in a couple of weeks.

6

Thanks for the advice, going to try and do some exercises before I see my specialist in a couple of weeks.

7

Thanks for the advice, going to try and do some exercises before I see my specialist in a couple of weeks.

8

Thanks for the advice, going to try and do some exercises before I see my specialist in a couple of weeks.

9

Thanks for the advice, going to try and do some exercises before I see my specialist in a couple of weeks.

10

Thanks for the advice, going to try and do some exercises before I see my specialist in a couple of weeks.

11

I wouldn’t still be walking without my neuro-physio and the FES machine she gave me, might be worth looking into. X

12

I had a great neruo physio who visited me at home, the problem I had was I couldn’t do them alone, and so worn out trying. In the end she had to stop coming but don’t blame her I physically just couldn’t do it.

But heard it really works good luck x

13

Apologies for the repeated posts, my ipad has gone a bit haywire.

14

I have been seeing my neuro physio for about 8 years. When I wasn’t so bad as I am now I used to see her once a week for four weeks then not four weeks. As I’ve got worse, I’ve upped the amount and now see her once a week. She is absolutely brilliant. I do strengthening exercises with her for a bit less than an hour - for the first bit she massages the knotty muscles round my shoulders and calves and feet. She’s helped me with my gait, helped me with an FES, gives me exercises to do in the meantime, listened to me when something is getting me down, has helped other MS clients with applications for DLA and is just brilliant in every way.

Even without all the non-physio stuff mine does, I feel sure the exercising has helped me be as physically good as I could be. Just make sure you get a neuro physio, preferably one with plenty of experience of MS.

15

Thanks, I will speak to the MS nurse tomorrow.

16

I’ve seen a physio occasionally over the last 11 years, but to be honest the last one I saw didn’t really address my needs. Then last week I saw a neuro physio and she was brilliant. She knew immediately what was needed and what would help me. She has given me strength and balance exercises which are exactly what I need for my weak left leg and gait.

I would definitely recommend a neuro physio if you can get to see one rather than an ordinary physio.

Hilary

17

hiya

neuro physio doesnt exist here. however i lie between 2 physios,geographically,have seen them both. one does home visits,other doesnt. one is well experienced other is younger but far from daft! i have found their suggestions and discussions with me to be of great benefit,not only physically but mentally they treat me like a human and listen to what i say

ellie x

18

Sounds good, I will try for a home visit. Thanks.