Hi, I was diagnosed with MS in April and have since discovered that an issue I had back in October was due to my MS.
I have been left with constant pain and pins and needles in my hands. My MS nurse has asked my GP to prescribe me pain relief for this bit they are refusing they say my neurologist has to do this or tell them what I can have. My neurologist says my day to day care should be provided by my MS nurse and my GP.
I feel like I’m going around in circles but getting no help from anybody. Has anybody else experienced this. I don’t know where to go from here.
Hi there
Sorry u are experiencing the run around- been there unfortunately too.
So best advice i can give is ring the ms nursing team. Tell them u followed the advice to go to the GP. Tell them the GP is refusing to prescribe anything without some sort of letter from the neurologist to say what they should prescribe you.
My ms nurses managed to get the neurologist to sign a letter and forward it directly to GP (but also emailed me a copy) and then the GP prescribed one of the two items suggested.
Hope that helps. The maintenance of the pain relief atm is a problem for me with so many hoops to jump through for something that after almost 12 months is still needed yet they want a monthly review