Hello, I read your post and had to reply, I have never replied to any posts before!
I have had MS type symptoms since Jan 2014, sensation of insects across my skin (on and off all day) extreme fatigue, balance issues and a heavy left leg (had heavy left leg 3 years ago without any other symptoms). I saw my GP in February who sent me for a brain MRI (he said that he thought it may be MS) which showed “A 5mm hyperintense focus is demonstrated in the Right frontal lobe subcortical white matter best visualised on the flair sequence, this may represent a small focus of demyelineation but as is essentially non specific as an isolated feature”
The consultant saw the results and sent me a letter saying I was non urgent and would be seen in due course. I rang the secretary who said that the consultant did not think it was MS, The wait was around 4 months! so I went to another hospital. The consultant I saw said I probably did not have MS he sent me for a brain and spine MRI there and Sensory evoked potentials tests.
The SEP tests were within normal limits and the second MRI showed 2 lesions in the white matter of the frontal lobes, very non specific in appearance, no leasions in spinal cord. I was surprised to see I had another lesion in 3 months and disappointed that the lesions had not been measured on the report so I could compare to the first MRI.
I have been told the results are reassuring, that my problems are musculoskeletal and not neurological, I still have all the same symptoms, but my balance has improved, They have offered to scan me again in 12 months if symptoms persist.
Just thought I would let you know my story as it sounds so similar, would love to know how you get on, I feel so frustrated as know that what I feel is not right.