Hello Elle. I’m sorry you feel left out in the cold with no contact at a time when you really need it.
My own experience is that the NHS is fab at many things, bur communication is not always their strongest suit - particularly when there are letters to be typed - they can sit in an in-box for an age while people go on holiday/change offices/change sex, or whatever, it can take forever - the same thing can happen if, for instance, the neuro wants to talk about the scan results with the radiologist, and maybe they have a weekly meeting but for some reason a meeting has been cancelled…and…and. The weeks can go by so quickly in this kind of environment, although the time passes so slowly for those of us waiting for news.
Of course it isn’t really a letter you are after, I suppose - just a phone call to say that all is well. It is a real shame that this has not happened - it is such a small part of the effort involved in your care, but so important and would mean so much.
I think your first priority here is to be firm about getting an appointment with your neurologist. There is a lot to talk about. Your test results, your current difficulties, what they want to do about it, what your options are, and so on. I completely understand that part of you does not want to have that conversation, but your post does suggest that the current state of affairs is no good either, so biting the bullet and talking to them is probably the lesser of the two evils.
I hope you get some answers soon