I have been on Tysabri for 32 infusions, only had one relapse since starting treatment. I have started to feel unwell in the last few months, my consultant has sent me for a brain scan, Lumbar puncture & JC Virus test. My legs are very weak and walking with a stick at the moment, feel very let down ! Haven’t heard anything from anybody!! I am meant to have an infusion next Wednesday but i am seriously thinking about coming off my treatment. Apart from my leg weakness i do feel better in myself and have read up alot about Tysabri and not sure i want to have anymore. Does anybody know how long you have to wait for the JC virus test to come back ?? apparently it was sent to Sweden.
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