BACKGROUND: I’m 26 years old and finally got diagnosed after eight years of symptoms and tests. My last MRI lasted for two hours, which was heaps of fun! In February my consultant decided that he wanted me to try steroid IV treatment for three days because I was having quite a hefty relapse and my right side was getting quite weak. The day I finished I had an excruciating pain in my hips so I was taken in to hospital for a week so they could keep an eye out and so that my consultant could do a variety of tests as a process of elimination for diagnosis, as my MRIs only show that I have inflammation in my spinal cord. He confirmed MS in May. He told me he was going to refer me to the MS Nurses as I began having bladder problems, but there has been a little trouble here and, as yet, I have not seen anyone.
THE PROBLEM: Since around February I have been having problems with bladder infections. Numerous doses of varied antibiotics helped, and then they just stopped helping. I’ve had this particular infection for two months non stop now, although it gets better and worse. My main issue is that I’m often struggling to force my urine out. If I’m desperate, I get a good flow, but at the end I struggle. There was a time where I could only sleep with a hot water bottle between my legs but I have ended up scarring my inner thighs with burn marks so I’ve had to stop that. I went to see my GP yesterday who said that she thinks it’s cystitis, it’s definitely being caused because of my MS and she wanted to try me on a tablet that, in larger doses, is used as an anti depressant, but it can be used for neurological problems too. It’s called Amitriptyline. I’ve been using it for three nights now and I still have the horrible fuzzy pain across my bladder and urethra and I’m struggling even more to get my wee out!! She stopped my one antibiotic a night as well. I’m currently waiting on a call back so I can tell her.
I’m drinking cranberry juice every day and trying to drink plenty of fluids. Does anyone have any other advise perhaps? Anyone on an incredible pill that made it go away?
Thank you and sorry for the essay!