Hello, this is my first time here, gosh where to start?
A few months ago i started getting terrible pain, pins and needles in my arms and legs, sleeping was impossible, my legs gerk out on there own and so uncomfortable…I was sent for a spine mri which was fine, then a brain mri. here they found 2 leisons. i have since had a second brain mri with contrast and am waiting for a lumbar puncher, the neuro dr has suggested ms… my symptoms went for a while but have started to come back this week, only this time im having trouble reading and wrighting, when i wright i get the letter round the wrong way, i can see that im doing it wrong so correct it as i go, i also get numbers in a muddle. when im reading i know what the words says and means but my brain seems to jumble it up. like if im reading the word sleeping, i know what it says but my brain says peelings. talking is a problem to, in a conversation with someone i go to say a word, like kettle and the words will not come out, i can be looking at a kettle, i know it is a kettle but i cant say it, i end up saying something like, “you know the thing that boils water” although i can laugh about these thing with family to strangers i feel silly.
does any of this sound familiar to anyone else? and could this be part of ms? thank you for your time
yes-i totally get this! this is one of the things that it used to really upset me however now it still happens daily but i manage it better. easier said than done but try not to get upset re it cos its not ur fault-just faulty wiring…
i have four kids and they help by talking similar (they are old enough to know its not correct language) so we have unique communication in this house! when -i was really bad in 2012 my son texted for me-i had no idea how to spell at all. i hated that but it has eased and i can type given time but speech still variable and causes daily challenges.
Thankyou for your reply, I like your discription of what is happening "faulty wiring"lol. you seem to know excatly what i was trying to say, spelling is a real problem for me to, sometimes i just cant do it.
Im glad you have found a way to manage yours, thats good news.
goodness 4 kids, i take my hat of to you for managing that alone.lol
I have 1 she is 22 and she also is getting used to my mishaps with words ans actions.
Im not usually one to talk about things wrong with me, im one of these stiff upper lips, just get on with it types, but as i have not yet had em confirmed it is difficult to know what to do, im not affriad of it, would just like an answer.
I have so many questions and so many symptoms and not sure where to turn, when i see my neuro man or me gp i feel i cant say all i want to… 1 because it can take me so long to stutter it all out and 2 im sure they dont have the time to listen.
it also seems by reading a lot of posts here, there are a lot of symptoms that the docs simply dont put down to ms when clearly people who have ms feel.
oh dear, i seem to be wittering on now. lol
please excuse any spelling i have got wrong and thankyou so much for taking the time to talk to me x
just saw ur reply. i agree with what u say. can u get email address of ur nurse/neuro/gp? i email my gp if if speech is too difficult-tho he gives me time to speak its me that struugles with it.
i am happy to discuss re speech probs if u want? might be a while before i reply cos my friend died suddenly on thu and am trying to get my head round that but he told me in years gone by to live each day as fully as i can-and i will once the shock settles.
I have a similar problem. When I write anything nowadays I seem to get some of the letters around the wrong way ( I believe, but not sure) similar to dyslexia. Also I find it too difficult to read now as I have to keep going over the same words so don’t get anywhere.
I had blurred vision for a while but it was when I had to read words from right to left to check what I was seeing that I really knew something was wrong.
I also say the wrong words at the wrong time . my daughter is always correcting me. I have started a new job and find remembering the kids names really tough.
I have a similar problem. When I write anything nowadays I seem to get some of the letters around the wrong way ( I believe, but not sure) similar to dyslexia. Also I find it too difficult to read now as I have to keep going over the same words so don’t get anywhere.
Take care
[/quote] hi all, when i got my DX {to long ago) it was my eyes that was my main prob,. reading and writing, after a while i started to use a blue gel/peice of A4 folder/ see throo plastick;;;sorry for long way round that one!! but that works rearly well for me, i was told somtimes peaple with dyslexia use this method, as it stops the words juming around Julien,