Advice needed......

Hi my names Louise, and I’m feeling a little anxious. Four years ago, I was diagnosed with Transverse Myelitis with possible ms, after suddenly waking up one morning with pins and needles in my feet, which over the next few weeks had spread to most parts of my body making me numb all over…including my bladder area. I had a lumber punch…which was negative and an MRI scan which showed scarring on my cervical spine and two scars on my brain. I couldn’t take any steroids suggested as I was pregnant at the time. After 8 months and after I’d had the most horrendous birth all had cleared. Over the last four years I have had on and off pins and needles which have only lasted days. Also the tiredness…where I could if possible sleep for days. I have been under a neuro consultant ever since and have had six more MRI scans which have always shown the same amount of scarring as the first. I am writing this as 6 days ago the pins and needles have started again, first just in my toes, then my feet and have now spread up the back of my legs. I feel emotional and tired, I could literally cry over spilt milk. My memory seems shot aswell, I walk into a room and completely forget what I am in the room for. I go to say something but can’t remember what it is I want to say. My question is, at what point do I seek help? Do I seek help? Is it necessary? If it is ms, nothing can be done anyway, right? I am feeling scared.

Do you have an MS nurse attatched to your Neuro clinic ? If yes then give her a call.

If not do talk to your GP and tell him/her how you feel they can help with the dreadful fatigue and offer various meds to see if they help the pins and needles…Gabapentin worked for me but everyone is different.

Is yuor Neuro giving you watch and wait apps ? If so maybe time to go back but start with the above is my opinion.

Good Luck, hope you soon feel better than now.


Your neuro is waiting for more ‘evidence’ to help back up a diagnosis.

These are new symptoms so they need to be reported to neuro or ms nurse.

There is medication that can be taken for certain types of ms. This has been proven to be more effective if taken early. This is why its important to report any new symptoms.

Even if this is not ms - it needs investigating.

Take care