Hi All I just received MRI results on my neck and no new lesion have appeared! They compared it to my most recent scan in August and one of my lesion has reduced!! It doesn’t say by how much or anything but it’s looking positive for once after getting 2 scans on my neck before showing new lesions! I have the MS nurse in two weeks as due to start DMD’s so hoping find to find out more details about my scan results as now it’s making me wonder should I start DMD’s if there has been a reduction with one of my lesions could others improve but that something I can discuss with the nurse and consultant in Feb when I’m back also to see her. Take care Polly x
Hi, yeh, great news.
But I would take the advice of the MS nurse about DMDs.
luv Pollx
Hi Poll I’m glad I see her on 17th as I can discuss it through with her. My partner does believe I should still start them as although one has reduced I’ve had multiple appear from June. He keeps me grounded so I don’t get too ahead of myself lol
Hi Polly.
Glad it’s looking positive on the MRI front.
I’m not trying to push you in the direction of DMDs, as I have no axe to grind with that, but it’s important to understand they are aimed at stopping or reducing new lesions forming - they can’t do anything about ones that have already happened. So although it’s good that old ones appear to be healing up, I don’t think it has any implications for your DMD decision - that is about trying to stop new stuff happening.
Talk it over with your neuro and MS nurse anyway, but as with any “injury”, it’s usual for healing to occur over time (though it may be a long way from perfect). I don’t think it makes the case for or against DMDs.
Tina
x
Tina is quite right. Previous lesions should not make a difference to your decision on whether to go on dmd’s.
Dmd’s are to reduce relapses in frequency/severity. That means they act upon new lesions - not old ones.
It is however good news that the old ones are reducing.
It might be a good idea to do a little research on the different dmd’s before your appointment. You will then know a bit about them when you chat to your ms nurse.
The ms decisions website can help explain them all to you.
Teresa.x
Hi Tina and Teresa Both of you are right about the DMD’s, I’m still going to go ahead with them. The ms consultant advised me to have a look over the ms decisions page which I have and also spoke to my G.P as I’m still pretty unsure of what treatment to start. I had bloods taken to see if I would be suitable for tysabri and they are fine. So hoping once I speak to the nurse I’ll be able to make my decision then. Thanks for all your advice. Polly x
G,P’s in general do not know much about dmd’s as they are not specialists.
Your neuro and ms nurse are the best people to give advice.
Tysabri is usually used for very active ms and is a second line treatment. So is Gilenya.
If your ms is not very active then you will be offered the first line ones first. (rebif/avonex/copaxone). There is also the new oral therapy that has just become available. (BG12)
The nurse/neuro will talk you through what they think is the best plan of action for your ms.
P.S Have you started those wedding plans yet? We all need to get those new hats! lol!
Good luck
Teresa.x
Hi Teresa Wedding plans haven’t been started yet but will be starting soon. The neuro at the end of November gave me a list of tysabri, copaxone and rebif to research at the time she did think I was relapsing again but from my results it doesn’t seem to be the case. So likely I will be offered copaxone or rebif. I had my first known episode in June which has really affected by walking only now am I seeing some improvements, I went for a repeat MRI in August which showed more new lesions which they said can affect lots of other areas including my hands, wrists and arms but I’ve been fortunate that all I get is a little numbness and cramp feelings nothing like the problems I have with my leg. The neuro then sent me for another scan in October as wanted to see if anything else appeared and my MRI scan showed no more new lesions on my brain but they didn’t scan my neck again so I then went for a scan that after seeing the neuro in November. She told me in September I have MS based on the differences of my scan in August but was wanting to be sure on type so on my next appointment I should find that out as both results show no more lesions. Polly x