My Mum has a neuro disorder with symptoms very similar to primary progressive MS and she has been a wheellchair user for 20+ years.
She was discharged from hospital last friday. New Years Eve morning I found her unconscious and in an awful state.
New Years my family sat in a relatives room and we were told they couldn’t understand how she was still alive.
She had inhalation pneumonia of both lungs, pancreatitis, sepsis, kidney failure, heart failure, respiritory failure.
I’ve been spending 8 hours a day in ITU.
Yesterday she was asking for cups of tea. Telling us to cancel her hair appointment
It’s going to be a long haul but I have nothing but praise for the Drs and nurses on ITU. The nurses are doing good old fashioned nursing care and the equipment helps them to monitor.
I will worry when she goes back to the medical ward. If I have to I will sit by her bed all day and she will not be discharged until I think she’s well enough. She has a very complicated medical history with a few rare disorders. I understand my Mum’s medical history and needs more than any one.
My lovely Mum is still with us