hi guys I haven’t been on for some time. I was a career for my mum who had ms and passed away in July at 47
Two months after she passed my muscles and my vision started to play up a lot twitching and jolting and a lot of pressure in my eye my opticians asked on my eye test if I had any neurological issues or family members… shock and panic I paid for a privet mri as I passed all my neurologist tests apart from brisk reflexes.
They found brain lesions in subractinal region of the brain multiple scarring. I was diagnosed and sent to dr Malik which I’m sure some of you may know he believed it was not ms and perhaps lupus sent me for all tests and all came back negative including the lumber puncture all ana blood work etc.
My pet scan showed inflamed lymph nodes in my neck and ovaries
also my Oesophagus was inflamed thought.
My my muscles are going crazy and my face has so much reassure in it.
I do get pins and needles and headaches a lot.
Im tired a lot and feel as if I have flu a lot too.
I am 29 years old and really worried I don’t want to worry anyone with my mums story as that’s not helpful however I can’t I see what I see. I have three small children and worried for my future any advice would be great my neurologist thinks I will be fine but I’m sure more is going on as he keeps chasing his mind xx