My neurologist has finally got together with his neuroradiologist colleague and looked at my MRI images. I was initially seeing him privately but have now been referred to see him through the NHS.
Life is very difficult at the moment and I’ve not been able to go to see the neuro but he’s put his findings in writing to me under the circumstances.
They’ve decided that there is a lesion on my left optic nerve (still blurry), one at C5 and another at C6/7. He tells me that these are consistent with demyelination. He goes on to say that he’s received most of my blood test results and all is clear there, but the lupus anticoagulant test needs to be repeated as the sample was spoilt.
He said that my ‘tests and imaging so far are thus consistent with an inflammatory condition which could be Multiple Sclerosis’. Any thoughts on what else it could be?
My family had some terrible news a few weeks ago and stress levels are running extremely high. For about five days I had a fair bit of pain in my neck which would then radiate up the back and side of my head - could the lesions cause that?
I would guess my NHS appointment will probably happen in about eight to ten weeks. I think I may as well wait for that rather than keep paying privately. I couldn’t pay for any further tests etc. anyway.
I can’t really talk at home about this at the moment so would be so grateful for a chat here.