Today my legs are burning infact all of me feels achy and burning , not painful just a slowly cooking weird feeling. I’m still waiting for my new wheelchair and won’t venture very far in my old one. It’s running so slow now, when I first got it I could go at top speed and do miles in it. I feel too tired to do anything today and a bit sad I’m not sure why. I’ve just asked my friend for a lift tomorrow she’s brilliant and is my carer usually on Fridays. Tomorrow she is taking Molly to the dentist and later she will take me out. Does anyone else still feel sad about not driving? I hate relying on others. Christine is my friend as well as my carer, she will often do extra things she’s a good person. I felt a bit sad because not everyone likes dogs and another friend coming with us isn’t comfortable with Frazer. Christine says she will try to get her another lift. I don’t think everyone understands my need to take Frazer with me. But it won’t stop me he has the same rights as a guide dog so where I go he goes. It feel better telling you all of this. Today has been a hard day I feel as if some days are full of people putting barriers infront of me I had a massive struggle to book a mammogram, my first one, there’s so many barriers when you are in a wheelchair. Thanks for listening I hope it makes sense. Michelle and Frazer xx sent from a tablet.
Hi Michelle
I expect that is pay back for enjoying the day before, just so annoying that we can’t seem to be able to do a ‘normal day’ without having repercussions.
I can only suggest that you rest as much as you can and give yourself time to recover, and take neuropathic pain killers if you have some.
I do sympathise, as I know just how frustrating this is, hopefully tomorrow will be better (((hugs)))
Pam x
Hi Shelly. I find the Magnesium spray helps me hugely, when my feet are burning and heavy, as well as the twitching. It’s lovely and cooling too and with a tingle. And it smells lovely. 
Yes I feel very sad about not driving. We bought a used Fiat Doblo last September. The only adaptation is a drop down ramp at the back. The previous owner who did the driving, used to attach the winches to her elderly mum’s chair and push the button and mum was rolled up and in. There are things to lock the chair in place then. She had a chair suitable for this, as in with head support.
It was never our intention to use it this way, but hubby thought (actually no, insisted that this car would be a great buy for me. I was able to drive then. He convinced me it would be ideal in our miserable climate, that instead of popping wheels off my chair to fit in a boot, I could just push it up and in and close the door. Hmmm. Okay, you win. Within a couple of months I wasn’t able to flex my foot for the rocking motion needed for the Accelerator and brakes. Not safe!!! So now I no longer drive this “bus”. I can’t imagine people uncomfortable with Frazer! He’s hardly a Doberman called Tyson!!
I’ll add a link in a minute about my new wheels. xx
From my previous thread called Wheelie.
“”"Ssssue wrote:
That’s fabulous Poppy, you’ve been patiently waiting for a while now. I totally understand being excited about a new wheelchair. And the fact that your disability is still relatively new to you is a testament to how brilliantly you’ve coped with everything MS has thrown at you. Hopefully the Quickie Helium will indeed be a lovely Xmas present."
Sue
Today I answered,
“”“I certainly haven’t been coping very well this last week Sue. There have been many, many tears. It’s now a struggle to get a few metres to the car. (I don’t drive anymore). I can’t lift my right leg up into the car anymore and have to grab a handful of jeans and lift it. [sad] I shuffle unsteadily along indoors. Considering I was dxd end of May 2015 and recovered well until December that year, this rapid decline is a bit too much at the moment. The fine motor skills of my right hand are not so good anymore now either. It frightens the life out of me.”“”
Today I also posted,
"
However OT got involved and has begun the lengthy process of organising my own motorised chair. It will be a long wait I know, but I don’t mind.
The great news is that, at last, nearly twelve months later, I get my super duper Helium next Tuesday! OT and Technician guy will deliver it to my house and final tweaking will be done. I expect hubby (retired HGV mechanic) will be full of interest!
Happy happy.
Now I’ve waffled away on YOUR post jus 'cos you asked if anyone feels sad. Hmmm, bet you wouldn’t be stuch next to me on a bus ride! xx
Poppy, you are so lovely thank you for writing all of those encouraging things, it really helps. Im waiting for my phone call about my Salsa quickie mini 2…and i’m sooo excited to…to listen to us you’d think we’d both got fantastic convertible sports cars. We are having to end my motability contract early because my new chair will be too heavy for the hoist but also because Lee thinks transferring out of the wheelchair is getting harder. I’m waiting for my new chair to come before i send the grant forms back. They will often provide grant towards the adaptations and the additional down payment if you need a wheelchair accessible car.
Where do you get the magnesium spray from?
Frazers happy that you and everyone else on here like him. I’ll have to buy him a lion hat…did anyone see that lovely advert for amazon over christmas? the dog on it was so much like Frazer.
Michelle and Frazer xx
Thanks Pam, you make me laugh, Lee says exactly the same…its pay back for doing too much. I find it so hard to listen to him i am so impulsve…well used to be…i’m still pretending to be “normal”.
Michelle and Frazer xx
Hello Michelle.
Those burning legs drive me mad. Taking magnesium citrate has taken the edge off it and also reduced my spasms.
I cannot understand the problem some people have with companion dogs.
A rather self-centred district nurse took real exception to Seymour being in the room whilst she was failing to get any blood out of me. She claimed that cats always attacked her. (Hmm!) So my gentle three-legged cat who just wants a stroke was going to attack her. Of course it was my fault she couldn’t get any blood from me. Even when I suggested using the butterfly needle on the big fat prominent veins in my hand, I was dismissed as an amateur. How could I possibly know how to get blood out of me?
I hope you’re feeling better today.
Best wishes (woof) from a gloriously sunny day in Crowborough listening to some frantic Wagner on radio 3. I can never take Brunhilde seriously. x
Magnesium spray is readily available at Holland & Barratt. My daughter works there and brought it to my attention. She is forever bringing me stuff to try. (I drew the line at Snail Slime for a wonderful complexion!)
We had to buy (borrow small loan) our Doblo. To my annoyance my neighbour (who is originally from the UK) along the lane told me “Yes, I saw you’d been given a new car”. Grrrrrr! No Motability cars given here in Ireland. If you buy brand new you get all kinds of tax reprieves incl VAT, but if you buy used, you can’t. The vehicle MUST have been modified by us or another owner and must be kept for minimum two years. You are allowed to claim a percentage of fuel duty in arrears after 12months. Something like .49 cent per gallon. I am also exempt from road tax. No help with adaptations though. I have got so much worse since we got the bl**dy thing. I only drove it a few times when I knew it was time to give up. I really must find out how expensive or not, hand controls might be although it will be an extra pay out we could do without.
Would Frazer wear an Easter Bonnet I wonder?..Bunny’s ears?
Mine too where is the fire engine…i am sick of it.