Does anyone else experience a “burning/hot/tingling” sensation throughout most of their body?
I had had a bad night waking up at 3 o’clock, taking pain relief (not unusual) then and falling back to sleep about 4.30 a.m… On waking at 7 a.m. I thought I was OK. I sat up. My hubby brought my usual cup of tea at 7.30 a.m. I remember nothing till, at 10 a.m. I woke sitting up, something I’d never done before. I felt very unwell - weak and floppy with shakes in in hands. And, this painful burning sensation from my hips upwards. It covered my torso, arms and hands. My hands were shaky as I tried to sip tea. My head was foggy and woozy. I lay back hoping this would all pass but wondered whether this was a precursor to a further downward step in my PPMS.
As the day passed resting in bed the feelings gradually eased. It has left me anxious to know whether this is part of the course or something separate I should discuss with GP?
Most of my symptoms to date have been gradual. I now “furniture walk” indoors and use a wheelchair for outdoors and distances of more than a few yards. I use Peristeen for bowel incontinence - works well. Am taking Gabapentine 3300 mg daily for the “tingles” and pain mostly in lower legs and hands with Tramadol + Paracetamol for pain when needed. I have had only two instances of “burning” sensation before but in my spine and they didn’t last long.
I hope all this doesn’t come over as un-necessarily protracted. But, this episode is really worring to me as I haven’t heard anything similar being posted before. Sometimes I think I must be going a bit do-lally!!
Any words of advice/comments from folks in the know would be helpful.