2nd day of Lemtrada infuision, good day so far no nasty side affects been told i get them kicking in after day 3 Temp is up heart rate is up so extra monitoring.
Stuck in Hospital for 5 days on your own with no visitors isn’t that much fun family and close friends are to far away, luckily I have that one special person who pings me a cheerful message every 10 mins with out them this whole thing wouldnt be happening
Hope things going well – Cheers!
Good luck Phil
M
Day 3 still no side effects of actual infusion but have been told they will come so looking forward to that.
Good to hear Phil. We’re all rooting for those of you undergoing Lemtrada. It’s a scary drug so well done to you for going for it.
Keep us informed of progress.
Sue
Update so far todays infusion is now finished, I have a rash on all of the tops of my legs, told the nurse she asked would i mind lowering my trousers for her to look (didn’t have to ask twice lol) sorry couldn’t resist that one, she said yes that is the reaction, and some on my tummy and fore arms but ist not itchy or annoying yet, i did bring aloe vera gel to sooth it if needed but i can have another antihistamine shot as well if i need it other side effects aren’t showing yet.