My day-to-day existence
Not a lot is different each day, it’s the same each week, the only way I know what day it is is when I take my first pill from my pill pot. My daily routine starts when my husband wakes up at 7.30am and goes into the wet room (thanks to the council for the disability grant to converting our bathroom into a wet room) anyway… read more on my blog page
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your link isn’t working
J x
You`ve hit the nail on the head.
It`s existence and not living.
Sorry link worrying know.
Well that’s a comprehensive detailed account of common daily occurences.
Your husband is a star so in that way you’re lucky. It’s those freezing legs which crack me up.
Every day I find ways to keep myself stimulated and active in the brain department.
It’s so hard.
I think you are truly heroic to open up like this.
Best wishes, Steve. x
Amazon Lady, you’re a heroine to me too. Its terrific that you explain so well all the problems most of us PPMS/SPMS have to live with.
Yes, we live with it because the alternative isn’t too good a picture, especially for our loved ones including children and grandchildren.
A.L I’m only just getting to grips (poor choice of words) with Quofora self irrigation but I do not have enough strength to squeeze the warm water, nor do I have sufficient balance on the loo. Though to turn the other cheek (pun deffo intended) usually means I end up on the bathroom floor.
Thanks for your fab blog, I’ll try to remember to read it again x
Thank guys I thought if I said it like it was it hopefully would help others to understand, so thank for reading and for your comments they help me carry on writing, I’m thinking of writing an eBook with all my blog pages, hopefully it will be a good read.
all the best Deborah
Hi Deb, I managed to get to your link ok.
Your day is quite similar to mine, except I do get out 2 or 3 times a week. I need the outside connection. I am a talker…cant you tell…I crave conversation and retail therapy!!!
Is your hubby your full time carer? Mine is my primary carer and I have 2 lovely girls who come in every day. One of them does 2 sleep overs a week, to give my hubby chance of a good night`s sleep, as I even chatter in my sleep!!!
Would you like to get out to a centre of some kind? You could probably get transport which is wheelchair accessible.
I have a great wet room, which an OT put me down as urgent for, for a DFG. After a year waiting, I was told I was number 161 on the list. So we had to get a bank loan to pay for it.
Life goes on and we must try to enjoy it.
luv Pollsx