I am just wondering if there is any support or anything for people with MS that is under 30. No offence but alot of groups its alot of older folk. Hope nobody takes offence. I know it rare that younger people get diagnosed with MS at a young age. If anybody has any info. Im from North East of England. [Contact details removed by Moderator, please use private message facility]
Many Thanks
Hope everybody is as well as they can be. GODBLESS
I hope I can say, on behalf of everyone, no offence taken. MS doesnāt care how old you are, so why should we. Quite the reverse. I was diagnosed at the age of 55 so Iāve had a really good run. I met a beautiful young woman in her early twenties whoās nervous system had been completely trashed by MS. Words canāt describe how useless I felt watching her struggle to drag herself across a room.
I donāt see any reason why younger people canāt have their own section on this website. Wrinklies like me donāt have the culture or vocabulary to be relevant to young adults.
Shall we set one up? Would all those young (and young at heart) people with MS join in with Aaron?
We had a āyoung personsā forum page for years, but it was rarely used and got closed down relatively recently. There must be something available on facebook, or is it just for cat videos?
Itās a thriving group full of young buoyant people , but as I said, check out that link because there are many other similar ones all over the UK that meet up non-clinical environments.
Totally know what youāre talking about. Iām 30 and was diagnosed last year. Iāve been to a couple of support centres and hospital appointments where I feel very much like the youngest person in the room. Not comparing anyones struggle, but its tricky feeling like youth has been taken away from me. Have to keep reminding myself that Iām exactly the same person i was before diagnosis. But I rarely have days when I donāt think about the fact that I know have thing thatāll influence the rest of my life. Iād be happy to talk on here about dealing with all of this at a young age - hit me up if you want to.
I am a āyoungerā person with MS, though this is one of the only areas I feel younger in these days!
About me, Iām 32 and was diagnosed with RRMS at 29. I did have experience of the condition as my dad suffered from it as well.
I agree about the point of having being diagnosed at this age, how it specifically affects the course of the rest of your life. For me, I have taken the decision not to have children. Not for health reasons or worrying about passing the disease on but for purely selfish reasons. I have had relatively mild symptoms so far and so I want to spend these years enjoying myself with amazing holidays and earning a much as I can at work rather than taking time out to have children.
This is a difficult perspective to explain to friends and family!
Iām also one of the younger oneās on here with MS (iām 26) and iām Always the youngest person sat in the waiting room at any hospital or clinic appointments, sometimes its quite difficult to get involved with the threads on here as well as the debate can be more about MS within an older age group (hope no one is offended by that comment)
I know I was told there used to be a Younger people &MS forum here, but was closed due to lack of use, but considering how many new diagnosis there are now, and the comments on here requesting one, I think itās worth another shot. The Asian forum has hardly any traffic yet itās still open.