and the retirement I worked so hard for and planned for. I wanted to be able to enjoy a comfortable retirement, so we worked and saved. I’m lucky I’m not poor, but instead of spending on nice things and having fun and travelling, it’s all going to go on adapting my home, ramps, wet room etc. not to mention wheelchairs and scooter.
I might as well have drunk, smoked and drugged myself to ill health and squandered instead of saved then I’d get all of this stuff courtesy of the NHS and Social Services.
It’s nine years since my diagnosis. The deterioration has been relentless. I’d hoped I’d never need to use the wheelchair indoors, but that day arrived last week.
I’m so p’d off with the lack of interest and support from the NHS and all the other agencies that help some people, but not all and certainly not me.
Sorry for sounding sorry for myself, but it’s hard to keep positive and upbeat and smiling while life and the rest of the world is passing me by.