Hi, I’ve come to think that having an MS diagnosis can be dangerous, I don’t mean dangerous for me for me I mean once I tell medical staff at A&E they assume all my symptoms are MS related. I was diagnosed 10 weekss ago and am being referred for a differntial diagnosis.
About 5 weeks ago I had pulsating in my left ear and visited the GP as it changed to a vibration, she said I had fluid on the ear, then within a week I had a facial spasm. My face above my lip went numb and I dialed 999 as I naver experienced this before it was scarey. I could nott talk with the numb face. This lasted for a minute. When the ambulace came they took my blood pressure and it was 170 over something. They thought it was a TIA mini stroke, even though I said of my recent diagnosis. I went to A&E and mentioned i was recenly diagnosed with MS, the consultant examined me and let me go home. But what concerns me is people with MS can still have TIA mini strokes. I told my MS nurse and she was concerned and surprised by the consultant assuming it was definately 100% MS related.
Hi there, I am newly diagnosed too, neuro thinks I have had this for 11 years since I was 19 but it has worsened since June 2013. That’s when I found out I have ms. I bet you’re ordeal was horrible and terrifying. I know that most of my problems are ms related but you must always remember that we are still human and will still be susceptible to everyday problems. Its wrong to relate everything to ms, even though it can be difficult to know what’s ms and what’s not. I hope you don’t ever experience this again. Take care Rachel Xx
There’s the old humbug about a lady walking round with a broken ankle for months saying, “it’s just my MS”
Unfortunately it’s the nature of the beast. Medics are also quick to jump to MS as the cause of anything unusual and sometimes we need to be assertive to get any further investigations done.
I have to say though in 20 odd years whenever it has been something else I have been dealt with correctly – your situation was unfortunate because the symptoms that you had were seemingly neurological in nature. I don’t know what would happen if I had had something like that. I suppose you would have to insist on a neurological consult to rule out MS and force the A&E doctors to look elsewhere.
For the last week had ear symptoms of pulsating and fullness. So yesterday went to see a GP. He looked in my ears said nothing wrong but agreed to me seeing an ENT. I’ve had pulsating in my left ear now and then since my first attack. I walked away from this GP appt unsatisfied. I called 111 and spoke with a paramedic, she said best I see a different GP in next few hours. I go to 111 walk in centre and see second GP 6 hours later, she looks in ears and yes buldging with clear droplets. I have a slight raised temperature.
So not everything is MS. And in future I will try and get a second opinion if unsatisfied…