I guess it’s all just common sense and what most of us are already practising.
What annoys me is that it is called a cure. Who knows how his disease would have progressed anyway? Maybe he was always destined to be one of the lucky ones.
I’ve seen lots of these lists labelled as ‘cures’ - it will get peoples hopes up only to be dashed and could possibly leave people feeling depressed. And coming from a doctor is true arrogance.
JBK xx
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Classic Daily Mail
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My brother sent me this this morning in annoyance. Has anybody tried anything like this? I eat pretty well, exercise when I can, go outside in the sun, in fact the only thing I’m not very good at is avoiding stress but then that’s just my personality. I’m at a loss to see how a scar in the brain will be fixed with these actions but would also hate to be passing up anything that might help! Is the general feeling that he’s a snake oil salesman?
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To be fair, what appears to work for one person may not work for another person with MS…
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The only good thing I have to say about the Daily Mail is that it did keep me busy for a few years work-wise. I was a contractor in financial services, on one job I was part of a Daily Mail team dealing with complaints associated with DM articles!
Like JBK says, diet alone won’t cure anything! I’m doing this “fasting mimic” thing at the moment, for two reasons - firstly there is proven science in real fasting (but couldn’t do that with meds etc.) and secondly, I’ve gained over two stone so wanted to keep that in check. In that respect, it’s working well as I’ve lost about 7 or 8 pounds over 5 weeks and it’s not difficult either. I tried the 5:2 diet last year. My weight stabilised but I only lost a couple of pounds and it was a struggle, we gave up for Xmas and never re-started.
I’m sure there’s very few of us that think we can survive on junk food! and breathe
Sonia x
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Before MS struck, I was eating well (…good variety of foods, in portions that didn’t cause me to gain weight …or go hungry), taking frequent vigorous exercise (soccer, weight-training, swimming) - and for the first few years I was fortunate enough to continue being highly active.
However, as the condition became further established and started to progress, the level of activity fell away quite markedly from what had been my ‘norm’ for many years.
Despite the lifestyle I enjoyed, I still ended up with a neurological condition that is slowly but surely causing difficulty with every physical element od my life.
Personally, I think both Dr. Jelinek and the Daily Mail are being completely irresponsible by using the term ‘cure’.
I’m getting hugely brassed-off with this complete bullsh*t !!!
If it’s really potentially a ‘cure’, then organise a decent-sized trial to assess it properly …otherwise stop hailing it as a ‘cure’ instead of nothing more than a potential help to some people!!
Dom
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Does the Jelinek diet involve starving your body of carbohydrates so that it goes into ketosis?
Here’s the definition: ketosis is a metabolic process that occurs when the body does not have enough glucose for energy. Stored fats are broken down for energy, resulting in a build-up of acids called ketones within the body.
The Bart’s doctors think it’s likely that ketosis inducing diets are good for MS - here’s what they wrote on it:
http://multiple-sclerosis-research.blogspot.com/2016/05/clinicspeak-intermittent-fasting.html
It could be that the Mail carried a story that was true - a bit like a stopped clock telling the right time twice a day. Or the Jelinek diet does not involve ketosis and the story was rubbish.
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This doesn’t say it’s a cure, it just states a way to get reduce symptoms. I personally am rubbish at following diets but I do intend to one day move to a plant based diet. I have also been meditating every day for the past year and have hardly any symptoms and no relapses. I truly believe in the regime, in fact, I may even buy the book!
I’m still trying to get my head around these two statements.
- George Jelinek will never forget the day he was diagnosed with multiple sclerosis. It was Sunday, April 19, 1999, at about 4pm.
- His own symptoms first occurred just six days before his diagnosis.
Let me see if I’ve got this right; his neurologist works on Sundays and can produce a diagnosis in less than a week?
Awesome. I’m not surprised he found a cure!
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I thought the same, it was Australia and he was a doctor so I thought maybe he got preferential treatment? Personally having had ten years between first symptom and diagnosis I thought his neurologist was jumping the gun slightly. I’m assuming there is more to the story than this but have done some searching and can’t find anything!
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I think I read somewhere in the article, that it was a friend, also a doctor, that saw him…?
Can’t remember fully and not going to read the article again. If it is that simple to “cure” why are these diet recommendations not doled out alongside the various drug therapy?!
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Yes, typical Daily Wail.
The day he can prove conclusively that:
1 - He is not just enjoying a very long remission
OR
2 - This was not just a single neurological event
Then, he might be worth listening to. But, buy his book and you might just cure any cash-flow problems he has.
Geoff
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Dear All.
I wish to express these words as forcefully and as sincerely as possible… this person’s work, Jelinek, is excellent.
All of us know that this disease is very personal, almost tailor made, to the individual. Therefore strategies such as those listed in the article are not going to be found to benefit everyone (i do not recall seeing it being called ‘a cure’ anywhere other than in this forum thread). But to suggest this is ‘snake oil therapy’ that will benefit no one is equally as unreasonable.
Ultimately, Jelinek provides a guideline to enable a newly diagnosed MS sufferer to adopt an attitude of proactivity and hopefully a sense of optimism.
I adhere to swank, i enjoy the sun, i avoid stress, i exercise all that i possibly can, i have even taken up skateboarding as i suspect new skills in enhanced co-ordination and balance can help the brain form new pathways to maintain such physical abilities (with fresh myelin in place).
If you want to dismiss the article (which admittedly is treacle thick with sentimentality, and why not?) then fine; go wallow. For me… i am going to re-visit the free overcomingms.org website to brush up on those things i think i know.
If you are disinclined to conclude that all is lost, and that whatever cards MS has dealt you is all that will forever be, i recommend that you do the same.
Good luck. Chins up. Give yourself a chance to live this life well, even with its inherent and un-requested burdens.
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I’m glad this works for you but to imply that anyone who doesn’t do it is concluding that all is lost is somewhat unfair. MS, as we all know, is a very variable disease so it’s not surprising that some people get cynical about these ideas.
I have SPMS, I have a good diet, exercise and get out in the sun (even though it tends to have a negative effect on the MS). I love the idea of taking up something like skateboarding, and admire you for doing so, but no amount of positive thinking or dietary advice would stop me staying out of A&E if I did so…
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You are so right JBC the MS therapy centre I go to has two people in their mid 70s
who only walk with a slight limp, and they have both had MS close to 40 years.
Sadly it’s different for all of us.
look after yourself
mm
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George Jelineks book Overcoming MS - was written years ago. He advocates the use of high dose vitd3 - like other MS ‘specialists’. Michael Holick is another - well worth watching all of his youtube videos on vitd3. The non-dairy diet is important as too much calcium causes lots of problems with heart/liver/kidney. Dr Coimbra is another worth following.
And we all know we should be ‘moving’ as much as possible - lf you do not use it you will lose it - is so important. Even from a sitting position -you can still stretch and tone your muscles with a few Pilates moves and a stretchy band. Sitting on a fit ball - [fat ball l call it] will strengthen your core muscles. l rarely sit down all day - get about with my rollator and keep doing things all day. Sit down to eat about 8-30pm. Apart from taking the dogs out on my Tramper - which of course l do sit on - but wrestling with it over bumpy ground where l need to place my feet firmly to balance myself - and of course holding onto the handlebars - uses lots of energy and works muscles. So l get a good workout as well as the dogs.
When l first showed signs of MS symptoms - my GP tried to fob me off with telling me it was linked to migraine. Later, he explained that he did not want to tell me it was MS - as for many people they have one severe episode - and they might get over it and never have another. Telling them of a possible MS diagnosis could cause extreme anxiety and depression making it more then likely to return. This was 34yrs ago.
We are all aware of the risk to our sons and daughters of also getting MS - and to make sure they take Vitd3 is the best we can do to help keep them fit and well.
I know what you are saying and in fact, i said as much in the post you’ve replied to. I apologise if i seemed to be suggesting that anyone was a quitter.
It’s just that i read the posts in this thread and was ready to contribute, by agreeing that the Daily Mail is a hack rag tabloid, not worth the time to read. But then i did read it and i was able to compare my own findings against the details in the article and found myself utterly opposed to the comments in this thread.
By coincidence, the overcoming ms website became my primary source of info during the dark early days following my diagnosis. It might very well be the thing that directed me to the Swank diet.
I cannot tell you that the information found and ONLY the information found is responsible for the quality of health and life i currently enjoy. But what i can tell you, is that it most certainly did give me the attitude to feel that i am able to do something meaningful to adapt and genuinely overcome this disease… so far.
I am absolutely adamant that MS is an excuse to live well, and not an invitation to indulge cynicism. I implore all of you to find a way to reach this state.
All the very best of luck. Again, i meant no offence.
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We should throw him into a lake; if he doesn’t drown then he’s clearly a charlatan!
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i’m glad that paolo replied saying that jelinek is no fake.
his advice is to eat well, avoid stress and get out in the sun.
no snake oil in that.
it’s the daily mail that makes it sound dramatic.
to summarise eat well, avoid stress, get out in the sun and DO NOT READ THE DAILY MAIL.
carole x
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