I can’t remember if I’ve posted here since I was diagnosed in Feb this year… Anyway, it’s been a difficult time, navigating various neurology appointments, getting to know the staff at the neuro dept better than I would probably have liked, chasing forgotten referrals, trying to come to terms with it and looking for something that might help. I’ve felt a little bit of disapproval from some that I don’t want to go onto any DMDs at this point and want to see if there is anything else that may help me, and have discovered the Jelinek lifestyle overhaul approach (can’t remember how it’s described exactly) which I am starting to try and just wanted to put out there as I did a search and couldn’t see it anywhere else on here.
From what I can tell (I’m at a very early stage in doing it - started last Monday) it consists of eating no/very low levels of saturated fat (they describe it as eating a wholefood diet based on plants with seafood - so it’s a bit like going vegan but eating fish), along with vitamin D and fishoil supplements, getting daily exposure to the sun (easier said than done usually where I live!), doing exercise at least 5 times a week, meditating daily and taking medication (DMDs/steroids) as needed and prescribed.
So it all looks very common sense (we know that sat fat is bad anyway) and I feel that, if there’s even the smallest chance it could make a difference, then I want to do it. The more I find out about it, the more I’m hearing stories of people who say they’ve had less and less problems with symptoms - so I’m wondering why more people don’t talk about it or know about it? I asked my consultant if diet may have an impact on MS and she said no way - which made me doubt this stuff I’m finding out - but looking at it, it’s always better to eat healthily and she didn’t even ask what I was eating at the time (had she asked, it consisted of a large bag of maltesers every day, fast food and loads of cola - which is going to have an overall impact on health anyway). I asked about it at my local MS Therapy Centre, where they had flyers for the free Overcoming MS books they send out, and everyone looked at me either blankly or as if I was a bit strange. I sent off for them anyway and can’t find anything very controversial in there, but rather a load of hopeful stuff.
I’m finding the diet hard work at the moment, as it’s such a big change - and I haven’t even started on the exercise yet (am borrowing a cross trainer from a friend today :-)) but now feel I have a bit of hope, which I haven’t had since I was diagnosed. I just wondered if there was anyone else on here doing it? Apologies if there are other threads about it - I just searched the terms ‘jelinek’ and then tried ‘swank’ (as he did a study on a similar diet years ago) but nothing came up.