Just thought I’d share that I have started writing a blog about my MS and thought I’d share it here with you all I am going to try to keep posting things that may help people who have recently been diagnosed and useful tips and tricks I’ve been taught (though obviously I’m still learning about MS myself!).
Let me know your thoughts or suggestions of things you’d like me to write about. Any feedback will be greatly appreciated!
Brilliant blog. If I didn’t have so much brain fog at the moment I possibly could come up with something, if it clears and I remember! will let you know. Well done
I’d love to hear about your journey to diagnosis as that’s where I am now (selfish, or what lol). I saw the neuro on Tuesday last week and had to basically demand an MRI as he was so dismissive of my symptoms…
Hi Rachel, I enjoyed reading your blog too! I’ve still got one foot in limboland with an initial diagnosis of FND but going for a VEP test soon. MS is still a possibility, though my last neuro didn’t want to give me any labels. I’d also be interested to hear about your route to diagnosis.
Thankyou, that was well written and engaging! How interesting that you were sent off to do CBT. My neuro suggested that but as the wait was over a year (!) I ended up at a CFS/ME group therapy course (only 11 months later :/). I know that everyone’s experience is different and so comparing stories isn’t all that helpful sometimes. I’m one of those people who has a gut feeling that it’s MS but a clear MRI and other tests (so far…one more to go: VEP) say otherwise. But my intuition is sure that I’m right…Maybe I’ll follow the example of bloggers like yourself, one day, when I get a bit more clarity.