MS and weight gain v dieting

A bit of background: 6 years ago, I was 89.5kg (14st) and fit, doing 3-4 Bootcamps at the gym each week. A year later I’d gone up to 95kg but that was the point when my body gave out and I stopped exercising. I’d always been very sporty and used exercise to keep my weight down. In the last 5 years, my weight has ballooned to 129kg (over 20st). I’ve lived unwittingly with MS for 10 years (and perhaps as many as 18) but only diagnosed in early '21.

I’m Male, 59 and 182cm (5’11.5") and really, really fat! In short, I’ve not changed my diet as my inactivity has become worse & worse as my MS has progressed. I now get out of breath climbing the stairs. Weight is not the reason for my health issues but it IS amplifying the symptoms.

I’ve tried to diet sporadically but not stuck to anything. In no small part, dieting made me so knackered, though I now know to call it fatigue and it goes with the MS. So, after that long-winded intro, one question:

How have folks on here managed their weight (if susceptible to gaining), whilst coping with MS fatigue?

I know this is about diet in the broader sense (ie well-being rather than weight-loss) but it might give some useful pointers. He just posted it today. Then flick back to his fairly recent posts about fatigue too.

The keto type diets (paleolithic is quite similar) seem to be helpful in losing weight because they greatly reduce the blood sugar spikes and drops, so sustain for longer, and they appear to reduce inflammation. They should help with fatigue too, as you are not getting the fatigues with the spike and the fatigue with the drops, your energy from food is more smoothly released, and also more available for release.

Thank you. A lot of that rings true for me. Watch this space!

This excellent lot have just reissued their advice and here is the new version. The Public Health Collaboration are my go-to people for advice on diet and nutrition. Not a million miles away from what the (also excellent) Prof G recommends either (see Ziola’s post). If you want to lose weight and improve your general and metabolic health without semi-starving yourself, I think you will enjoy this way of eating. I certainly do. In a nutshell, I’m afraid it’s about enjoying good food and plenty of it, and cutting out the junky crap, but that’s no surprise, and no loss either. :slight_smile:

I regret your situation, as you have tried to make adjustments. One question, are you taking any steroids? If so, they may impede your attempts at weight loss. People on steroids have a hard time losing weight and weight gain is possible. In addition, you may see puffiness in your face that is new. Talk to your doctor about these issues, and good luck to you.

No, Veendam, no steroids. On meds for hypertension, prostate/ bladder urgency plus supplements e.g. Vitamin D, Cod Liver Oil, Magnesium. Also more recently baclofen for muscle spasms / rigidity. Tried Gabapentin but didn’t get on with it. No facial puffiness but feet, ankles & lower legs are very swollen. Could be heart failure as a result of no real CV activity for years.

The biggest problem is that the fatigue we feel from MS seems to be at odds with dieting and calorie deficit which can cause a degree of lethargy even for healthier folk. I need to read further as to the merits of ketosis, fasting etc.

Has anyone on here successfully lost weight whilst living with MS?

Good day GCCK. My pleasure.

I could not take Gabapentin - it gave me the hebegives! But it was successful for my wife who had PMS. I take Baclofen and so you mentioned and a ton more. You mentioned weight gain, have you been cleared for Diabetes? That can result in amputation of legs and feet if neglected. I have that same problem, but mine is from broken bones in my feet and ankles compounded by arthritis (gout). My pain never goes away but
and runs from my feet feeling like they are so swollen that they are going to explode to mild discomfort.

Fatigue is a ball buster. The only thing you can do is to rest, take a nap or sleep. At least in sleep there is no pain. I have several issues that cause fatigue but I have learned to go with it and nap/sleep if it does not interfere with your nightly sleep.

I am always available to listen to your issues, so do not feel like you are bothering me. I am here to share my experience good-bad or otherwise. Please send any messages via this site, as I cannot respond to the device you used on your inquiry.

I wish you the best. Keep me posted my friend.

Jim Veendam47