Hello (again)
Yes, Kay is correct that the secretary probably should have just said you need to hear the results directly from the neurologist. However, if I’m correct, the only person who ever thought you had a possibly serious neurological problem, ie MS, is you. None of the doctors you’ve seen has ever said they thought you have MS.
Which is why you’ve ended up going private and then insisting on having these tests. Which as you say are incredibly expensive.
I suspect you might have ‘persuaded’ the neuros secretary to tell you that there was ‘nothing sinister’ about your MRI results. You have of course been incredibly worried about your seemingly neurological problems in spite of previous MRI scans and neurologists telling you it’s not MS.
Obviously you will see the neurologist for the final follow up. And will be assured that it’s not MS, or indeed anything else that can be seen on MRI. Just as they expected.
I know you’ve been convinced it’s MS all the way through, and there is probably some part of you that is unhappy that you’ve got the ‘all clear’ on the MS front, even while you know that not having MS is a good thing.
Why not see your GP, talk through all of the various symptoms you’ve had over the past years, including your very first tests. Discuss how deeply worried you’ve been. Ask whether in their opinion there could be something else causing all these symptoms. If so, is there any other specialist to whom you could be referred. Probably aim to stick with the NHS in the future, given how much money this has all cost you.
If your GP thinks there is nothing physical wrong, that in fact your deep worry has caused physical symptoms to become apparent, then maybe there is something else that could help. Namely some form of therapy, even CBT maybe? Please note that I am in no way suggesting that you don’t have these physical symptoms, but that sometimes physical effects can be caused by ones mind.
Please take this news, whenever you hear it officially, as good news. At least you do not have this bloody awful illness. Look after yourself, look forward to becoming a father and try to put your lucky escape from MS from your mind.
Sue