I have just seen my neuro to get my results from MRI scan & blood tests. My MRI showed a lesion on my cervical spine & also a lot of ‘wear & tear’. My bloods showed that I was low in calcium & vit D.
He said that he wanted to repeat the MRI in 6 months to a year as he could not give a diagnosis yet. He is writing to my GP with some different meds to try as he said he wants to treat the symptoms.
I dont know how I feel to be honest. Does this mean that I will always have nerve pain, or is it possible to totally get rid of the pain/sensations? I still feel no closer to knowing whats wrong.
Hi I have a cervical cord lesion too. The MRI was done 2 years ago. I had a second one a year later and no change. I had Lumbar puncture done in August which was negative. One neuro thinks it is side effects from radiation theraphy for cancer that I had in 1990. A second neuro is currently saying cervical myleopathy of unknown case. I am having another MRI in March to see if any changes. I dont have nerve pain just spasticity/weakness in one leg! I have basically had symptoms for 4 years.
Hi Cath, sorry to hear you are as yet, no nearer to getting a diagnosis.(dx)
There are some folk who get their dx early on in their journey, yet others wait years. Then there are others who never get a dx.
I fall into the last category. But even without a definite dx, it is possible to be prescribed good meds to help with some of the symptoms…as you have found with amitriptyline.
I was even given access to an MS nurse for years. She helped me out lots of times.
being in limboland can be horrible, but it doesn`t mean people have to feel they are left stranded, although I know it is like that for some.
Just do your best to hang in there and hopefully you will get that dx soon.