I feel so lost, I had a brain and cervical spine MRI a couple of weeks ago that showed 2 lesions on the brain that “cannot rule out demyelination” according to the report yet my Neuro won’t diagnose MS or anything else. I had to push for LP which he has agreed to request and then see me in 6 weeks for the results. I know that if it’s MS it is currently mild as my reflexes are considered normal and currently I only have l’hermitte’s sign as a symptom but 7 years ago I had months of muscle weakness in my legs that left me barely able to climb my stairs and more recently I had weeks of tingling/numbness in my fingers
I am so worried that all these delays are delaying me getting DMDs that could reduce the severity of another relapse if it is MS. I am married with 2 young children (8 and 3) and I work full time doing a job I love, I don’t want to wait until a relapse is severe before I get a diagnosis and DMDs.
I am trying to be positive etc but am starting to feel very down and alone, I just wanted to offload here if that’s ok.