Hi Kris, annon above is trying to calm you down and it is obvious you are very stressed. I have also seen that you have posted on other Ms sites too. I really have to commend you for phoning Medway to get answers on the biotin. I do really know were you are coming from because I am the same as I have been in limbo for so long.
I had radiation treatment for hodgkins Lymphoma in 1990 when I was 25. I recovered well but 6 months after treatment I got l’hermittes badly. I was so convinced that I had MS - there was no internet at the time but I went to the barbecan library at lunch times and poured over medical literature. I saw a neurogist had tests -full body MRI, LP and VEP tests etc. All were clear. I was told that very slight inflammation can cause l’hermittes which often cant be seen on MRI. I was told that this inflammation was due to the radiation treatment. The l’hermittes went away but in 2005 I had numbness. Back to neuro I went and another clear MRI. Numbness went away, then in 2008 I had another attack of l’hermittes, numbness fatigue etc. Didnt go to neuro this time as GP said it was a virus and I couldnt have MS because my scan in 2005 was clear. I recovered to 90% l’hermittes went but a year later I started to notice foot drop appear after a long walk. I hounded my GP for over a year about this until I finally saw a neuro in 2011. New scan revealed a lesion on the cervical spinal cord. He said it was neurodegeneration from the radiation treatment as the LP was clear along with brain scan.
I went for another opinion in 2012 and he completely discounted the radiation theory. He said he thought I had suffered from benign MS since 1990 and that it looked like SPMS now. But after another MRI and clear LP he said that maybe I had had a one off attack and suffering from that. Scans dont look like it is progressive.
I saw a third neuro who said that the attack in 1990 was probably due to the radiation but what is happening now looks like PPMS but cant diagnose me as I dont tick enough of the boxes.
So there you go , 3 neuros with 3 different opinions.
My friend had a an attack of l’hermittes and clear MRI a few years ago. She was frantic too and got no answers. Was told it was depression and anxiety causing her problems. She went and saw a Dr Amir (dramir.com) and he said she had a problem with her jaw (TNJ?). She wears a brace and has had no further problems. HE has been mentioned here (and slagged off too) as being a cure for MS issues. My friend swears by him although she didnt have a dx of MS but she was heading that way. I have been tempted to try it myself but I have spent so much money on other things like getting all the mercury from my teeth and hyperbaric oxygen therapy. I am just about to spend £1000 on an FES device for footdrop.
I really hope you get answers soon.